Innlandet Hospital Trust, Norway.
Inland Norway University of Applied Sciences, Norway.
Autism. 2024 Jun;28(6):1369-1381. doi: 10.1177/13623613241245578. Epub 2024 Apr 17.
In this study we have asked a group of autistic young adults to describe what is important for their quality of life. The 14 participants (aged 21-29 years) were recruited from a 10-year follow-up study of autistic people. During interviews, our participants described the importance of having relationships with family, friends and pets. Having meaningful activities and being able to immerse themselves in particular interests was also reported to be important for a good quality of life. Interests had also guided their choice of what to study and what to do for work. They also spoke of how communication problems with professionals, bullying and sensory and emotional overload could have a negative impact on quality of life. Future interventions should focus on how professionals can help autistic people to connect to people/animals and meaningful activities, as the participants described this as important for having a good quality of life. These findings may be helpful in enhancing how passions and interests can be seen as opportunities for both academic and work careers for autistic people. Future research and interventions should also look at the communication barriers between autistic people and professionals, and how two-way understanding can be improved.
在这项研究中，我们邀请了一群自闭症青年描述对他们生活质量重要的因素。14 名参与者（年龄 21-29 岁）是从一项自闭症患者 10 年随访研究中招募的。在访谈中，我们的参与者描述了与家人、朋友和宠物建立关系的重要性。有意义的活动以及能够沉浸在特定兴趣中，对高质量的生活也很重要。兴趣也指导了他们对学习和工作内容的选择。他们还谈到了与专业人员沟通困难、欺凌以及感官和情绪过载如何对生活质量产生负面影响。未来的干预措施应侧重于专业人员如何帮助自闭症患者与人/动物和有意义的活动建立联系，因为参与者表示这对拥有高质量的生活很重要。这些发现可能有助于提高人们对自闭症患者学术和工作生涯中激情和兴趣的看法。未来的研究和干预措施还应研究自闭症患者与专业人员之间的沟通障碍，以及如何改善双向理解。
