迈向以患者为中心的心血管疾病患者工作聚焦型医疗保健：对患者经历和需求的质性探索

Towards person-centred work-focused healthcare for people with cardiovascular disease: a qualitative exploration of patients' experiences and needs.

作者信息

Hagendijk Marije E, Zipfel Nina, Melles Marijke, van der Wees Philip J, Hulshof Carel T J, Çölkesen Ersen B, Hoving Jan L, van der Burg-Vermeulen Sylvia J

机构信息

Department of Public and Occupational Health, Coronel Institute of Occupational Health, Amsterdam Public Health Research Institute, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.

Department of Human-Centred Design, Faculty of Industrial Design Engineering, Delft University of Technology, Delft, The Netherlands.

出版信息

Disabil Rehabil. 2025 Jan;47(1):194-206. doi: 10.1080/09638288.2024.2344653. Epub 2024 Apr 27.

DOI:10.1080/09638288.2024.2344653

PMID:38676465

Abstract

PURPOSE

To explore the experiences and needs concerning work-focused healthcare of patients experiencing problems with work participation due to cardiovascular disease based on all facets of person-centred care.

METHODS

Nineteen patients who experienced or continue to experience problems with work participation due to cardiovascular disease participated in semi-structured interviews preceded by preparatory written assignments. The transcripts were analysed by means of directed qualitative content analysis. Adapted principles of the Picker Institute for Person-Centred Care provided a template for the analysis.

RESULTS

28 experiences and needs emerged and were grouped into the eight principles for person-centred work-focused healthcare. Randomly presenting one theme for each of the eight principles, the themes included: (1) frequent encounters with occupational healthcare professionals; (2) substantive work-related advice; (3) transparency in communication; (4) support for family; (5) information provision on the work-focused healthcare process; (6) personal control during the process; (7) empathy for the personal situation; and (8) tailored work-focused support.

CONCLUSIONS

The identified experiences and needs for work-focused healthcare of patients experiencing problems with work participation due to cardiovascular disease clearly indicate the need to improve the delivery of person-centred work-focused healthcare to better meet the individual needs of patients.

摘要

目的

基于以患者为中心的护理的各个方面，探讨因心血管疾病而在工作参与方面存在问题的患者在以工作为重点的医疗保健方面的经历和需求。

方法

19名因心血管疾病而经历或仍在经历工作参与问题的患者参加了半结构化访谈，访谈前有准备性书面作业。通过定向定性内容分析对访谈记录进行分析。以患者为中心的护理的Picker研究所的改编原则为分析提供了模板。

结果

出现了28种经历和需求，并被归纳为以患者为中心的以工作为重点的医疗保健的八项原则。随机为八项原则中的每一项呈现一个主题，这些主题包括：（1）与职业保健专业人员的频繁接触；（2）实质性的与工作相关的建议；（3）沟通的透明度；（4）对家庭的支持；（5）提供有关以工作为重点的医疗保健过程的信息；（6）过程中的个人控制权；（7）对个人情况的同理心；（8）量身定制的以工作为重点的支持。