SnT, University of Luxembourg, Esch-sur-Alzette, Luxembourg.
LIDER Lab, DIRPOLIS, Scuola Superiore Sant'Anna, Pisa, Italy.
JMIR Hum Factors. 2024 Apr 30;11:e53113. doi: 10.2196/53113.
As consent for data sharing evolves with the digital age, plain-text consent is not the only format in which information can be presented. However, designing a good consent form is highly challenging. The addition of graphics, video, and other mediums to use can vary widely in effectiveness; and improper use can be detrimental to users.
This study aims to explore the expectations and experiences of adults toward consent given in infographic, video, text, newsletter, and comic forms in a health data sharing scenario to better understand the appropriateness of different mediums and identify elements of each medium that most affect engagement with the content.
We designed mock consent forms in infographic, video, text, newsletter, and comic versions. Semistructured interviews were conducted with adults who were interviewed about their expectations for consent and were then shown each consent medium and asked about engaging elements across mediums, preferences for consent mediums, and the value of document quality criteria. We transcribed and qualitatively co-coded to identify themes and perform analyses.
We interviewed 24 users and identified different thematic archetypes based on participant goals, such as the Trust Seeker, who considered their own understanding and trust in organizations when making decisions. The infographic was ranked first for enhancing understanding, prioritizing information, and maintaining the proper audience fit for serious consent in health data sharing scenarios. In addition, specific elements such as structure, step-by-step organization, and readability were preferred engaging elements.
We identified archetypes to better understand user needs and elements that can be targeted to enhance user engagement with consent forms; this can help inform the design of more effective consent in the future. Overall, preferences for mediums are highly contextual, and more research should be done.
随着数字时代的发展，同意书的形式也在不断演变，不仅仅只有纯文本的形式。然而，设计一份好的同意书极具挑战性。添加图形、视频和其他媒体可以在效果上有很大的不同；而不当使用可能会对用户造成伤害。
本研究旨在探索成年人在健康数据共享场景下对信息图表、视频、文本、新闻通讯和漫画形式的同意书的期望和体验，以更好地了解不同媒介的适当性，并确定每个媒介中最能影响内容参与度的元素。
我们设计了信息图表、视频、文本、新闻通讯和漫画形式的模拟同意书。对成年人进行半结构化访谈，了解他们对同意书的期望，然后向他们展示每个同意书媒介，并询问他们对各媒介的参与元素、对同意书媒介的偏好以及文件质量标准的价值的看法。我们对访谈进行转录和定性共同编码，以识别主题并进行分析。
我们采访了 24 名用户，并根据参与者的目标确定了不同的主题原型，例如“信任寻求者”，他们在做出决策时会考虑自己对组织的理解和信任。在健康数据共享场景中，信息图表在增强理解、优先处理信息和保持适当的受众定位方面排名第一。此外，具体的元素，如结构、逐步组织和可读性，都是受欢迎的参与元素。
我们确定了原型，以更好地了解用户需求和可以针对的元素，从而增强用户对同意书的参与度；这有助于为未来提供更有效的同意书设计提供信息。总体而言，对媒介的偏好高度取决于上下文，应该进行更多的研究。
