Kingsdorf Sheri, Pančocha Karel, Troshanska Jasmina, Rasimi Teuta Ramadani
Institute for Research in Inclusive Education, Faculty of Education, Masaryk University, Brno, Czech Republic.
Department of Special Education and Rehabilitation, University of Tetovo, Tetovo, North Macedonia.
Int J Dev Disabil. 2022 Aug 17;70(3):479-492. doi: 10.1080/20473869.2022.2111970. eCollection 2024.
Effective practices for supporting families with autistic children ensure a match between their needs and the expectations and competencies of the clinician. Applied behavior analysis (ABA) services are a common provision for serving autistic individuals. However, in regions where ABA is in its infancy, like the Czech Republic and North Macedonia, culturally relevant resources, regulations for practice, and standardized coursework are missing. In their absence, it is necessary to investigate the degree to which practitioners in the regions are meeting the behavioral needs of families. Assessing this match can set the stage for establishing more stable and effective services in the areas, as well as neighboring countries with similar historical foundations. Therefore, a survey was conducted to examine the perceptions of caregivers and trainers (those who self-identified as providing support to families with autistic children). A total of 233 caregivers and 204 trainers participated. Analysis of the survey responses verified the lack of behavioral knowledge on the part of the trainers, the apparent lack of access to ABA services for families in both regions, a potential misalignment between family needs and training targets, and the disparities between the two countries. The information evaluated here can be used to guide preservice training, dissemination efforts, and regulations surrounding behavioral practices.
为自闭症儿童家庭提供支持的有效做法是确保他们的需求与临床医生的期望和能力相匹配。应用行为分析（ABA）服务是为自闭症患者提供服务的常见方式。然而，在ABA尚处于起步阶段的地区，如捷克共和国和北马其顿，缺乏与文化相关的资源、实践法规和标准化课程。在这些资源缺失的情况下，有必要调查这些地区的从业者满足家庭行为需求的程度。评估这种匹配度可以为在这些地区以及具有相似历史背景的邻国建立更稳定、有效的服务奠定基础。因此，开展了一项调查，以了解照顾者和培训师（那些自称向自闭症儿童家庭提供支持的人）的看法。共有233名照顾者和204名培训师参与。对调查回复的分析证实了培训师缺乏行为知识，两个地区的家庭显然难以获得ABA服务，家庭需求与培训目标之间可能存在不一致，以及两国之间的差异。此处评估的信息可用于指导职前培训、推广工作以及围绕行为实践的法规制定。
