Hopwood Vicky, Pini Simon, Spencer Bethan K C, Kitchen Cath
University of Leeds, Leeds Institute of Health Sciences, UK.
National Association for Hospital Education, UK.
Contin Educ. 2024 May 15;5(1):76-89. doi: 10.5334/cie.111. eCollection 2024.
For some children and young people (CYP) with long-term physical health conditions (LTPHCs) attending school can be difficult. There is a lack of evidence documenting their school attendance experiences, how schools manage absence for these children, and subsequent effects. This study utilised an existing dataset from eighty-nine 11-18-year-olds in mainstream secondary schools in the United Kingdom across 11 LTPHCs that provided first-hand accounts about the children's experiences of school. Data pre-coded "attendance" were subject to thematic analysis to explore issues emerging. Findings showed attendance patterns varied, with some CYP missing little and others significant amounts of education. Children with LTPHCs wanted to attend school and did their best to navigate education alongside health. School systems for attendance were inconsistent and adversarial. Remedial and supportive action emerged as lacking, and children felt it was their personal responsibility to make up for lost time and missed work when absent. Decisions on whether they attended school, coupled with practices promoting high attendance had detrimental consequences for CYP with LTPHCs educationally, emotionally and socially. Overall, children with LTPHCs felt punished, stigmatised, unfairly treated, unequal and excluded. Results have implications for education, health, and policy practitioners to better plan and target attention so that the LTPHC cohort are treated sensitively and equitably and afforded their entitlement to education when they cannot go to school for health reasons often outside of their control.
对于一些患有长期身体健康状况(LTPHCs)的儿童和年轻人(CYP)来说,上学可能会很困难。目前缺乏证据记录他们的上学出勤经历、学校如何处理这些孩子的缺勤情况以及后续影响。本研究利用了来自英国主流中学的89名11至18岁儿童的现有数据集,这些儿童患有11种长期身体健康状况,提供了关于他们上学经历的第一手描述。对预先编码为“出勤”的数据进行了主题分析,以探索出现的问题。研究结果表明,出勤模式各不相同,一些CYP缺课很少,而另一些则缺课很多。患有LTPHCs的儿童想上学,并尽最大努力在兼顾健康的同时接受教育。学校的出勤制度不一致且具有对抗性。补救和支持行动似乎不足,孩子们觉得在缺课时弥补失去的时间和错过的功课是他们的个人责任。关于他们是否上学的决定,以及促进高出勤率的做法,对患有LTPHCs的CYP在教育、情感和社交方面产生了不利影响。总体而言,患有LTPHCs的儿童感到受到惩罚、被污名化、受到不公平对待、不平等且被排斥。研究结果对教育、卫生和政策从业者具有启示意义,他们需要更好地规划并针对性地关注,以便在患有LTPHCs的儿童因健康原因(往往超出他们的控制范围)无法上学时,能得到敏感且公平的对待,并享有受教育的权利。