Leeds Institute of Health Sciences, University of Leeds, Leeds, UK.
School of Psychology, University of Leeds, Leeds, UK.
J Adolesc. 2024 Feb;96(2):337-349. doi: 10.1002/jad.12278. Epub 2023 Nov 27.
The INSCHOOL project aimed to understand the school experiences and unmet needs of young people across a diversity of long-term physical health conditions.
Young people aged 11-18 years, in mainstream secondary school in the United Kingdom, with one of 11 physical health conditions were invited to unique participant-driven interviews, focus groups, or written activities. Creative preparation activities were provided to give participants increased control over the data collection and prioritize their voices. A needs analysis, in combination with participatory analysis sessions with young people, identified the common needs of participants in relation to their school lives.
Eighty-nine young people participated from April 2022 to 2023. Analysis of their transcripts defined six common needs across all the health conditions: Need to safely manage my health at school; need for a flexible education pathway; need to be acknowledged and listened to in the right way; need to be included in and supported by the school community; need to build toward my future; need to develop attitudes and approaches to help me cope in school.
This study has generated new, actionable knowledge by identifying six major needs that young people have in relation to the intersection of their health condition and their school life. This paper shows that a commonalities approach to research and policy development is warranted given the similarities in experiences and needs. The common needs identified in the INSCHOOL project highlight six areas where future interventions could be targeted to begin making meaningful changes for all young people with long-term health conditions.
INSCHOOL 项目旨在了解具有各种长期身体健康状况的年轻人在学校的经历和未满足的需求。
11 至 18 岁的年轻人在英国主流中学就读，患有 11 种身体健康状况之一，被邀请参加独特的参与者驱动的访谈、焦点小组或书面活动。提供了创造性的准备活动，让参与者更多地控制数据收集并优先考虑他们的声音。需求分析，结合与年轻人的参与式分析会议，确定了参与者与学校生活相关的共同需求。
2022 年 4 月至 2023 年，89 名年轻人参与了研究。对他们的转录本进行分析，确定了所有健康状况下的六个共同需求：在学校安全管理健康的需求；灵活的教育途径的需求；以正确的方式被认可和倾听的需求；被学校社区包容和支持的需求；为未来发展的需求；培养帮助我在学校应对的态度和方法的需求。
本研究通过确定年轻人在健康状况和学校生活交叉点上的六个主要需求，生成了新的、可操作的知识。这表明，鉴于经历和需求的相似性，有必要采取共性方法进行研究和政策制定。INSCHOOL 项目中确定的共同需求突出了六个未来干预的重点领域，这些领域可以针对所有患有长期健康状况的年轻人，开始进行有意义的改变。
