Department of Nursing Science, Faculty of Health Sciences, University of Eastern Finland, Kuopio, Finland.
Kuopio University Hospital, Wellbeing Services County of North Savo, Kuopio, Finland.
J Clin Nurs. 2024 Aug;33(9):3513-3525. doi: 10.1111/jocn.17289. Epub 2024 May 26.
This study aims to describe the experiences of women with gynaecological cancer regarding family-oriented care (FOC) and how they rated their health-related quality of life (HRQoL) using a 15D instrument (15D©).
A cross-sectional mixed-method study.
The data were collected by electronic surveys of two Finnish cancer associations from gynaecological cancer patients (n = 53). The qualitative data were analysed using thematic analysis. The HRQoL answers were analysed statistically using IBM SPSS Statistics (Version 27).
The results emphasized that FOC is not yet part of the care process. Furthermore, comprehensive encounters are lacking, and the experience of being a woman is forgotten during the care process. The results of the HRQoL analysis suggest that distress and the discomfort and symptoms of cancer patients are perceived as significant factors affecting their quality of life during different phases of treatment. Family status also has an impact on perceived quality of life, whereby those living alone gave worse ratings for the depression and vitality dimensions.
In part, the quantitative and qualitative data supported each other, but the descriptions provided a more comprehensive view of issues that affect women in a more multidimensional way, such as sexual health issues. More research on the effectiveness of FOC is needed to develop the capacity for effective healthcare.
IMPLICATIONS FOR THE PROFESSION AND/OR PATIENT CARE: This study was able to identify important areas for improvement in clinical practice from the perspective of patients and their families.
This study was prepared and reported according to the STROBE checklist.
No patient or public contribution.
本研究旨在描述妇科癌症女性患者对家庭为中心的护理（FOC）的体验，并使用 15D 工具（15D©）评估她们的健康相关生活质量（HRQoL）。
一项横断面混合方法研究。
数据通过芬兰两个癌症协会的电子调查收集，调查对象为妇科癌症患者（n=53）。定性数据采用主题分析法进行分析。HRQoL 回答采用 IBM SPSS Statistics（版本 27）进行统计学分析。
研究结果强调，FOC 尚未成为护理过程的一部分。此外，全面的医患互动不足，女性在护理过程中的体验被遗忘。HRQoL 分析结果表明，在不同治疗阶段，困扰和癌症患者的不适和症状被认为是影响其生活质量的重要因素。家庭状况也会影响感知到的生活质量，独居者在抑郁和活力维度的评分较差。
部分定量和定性数据相互支持，但描述提供了一个更全面的视角，以更多维的方式影响女性的问题，如性健康问题。需要更多关于 FOC 有效性的研究，以提高有效的医疗保健能力。
对专业和/或患者护理的影响：本研究能够从患者及其家属的角度确定临床实践中需要改进的重要领域。
本研究根据 STROBE 清单进行准备和报告。
无患者或公众贡献。
