基于同伴提供和技术支持的针对痴呆患者照顾者的心理健康干预措施的可用性、可接受性和初步有效性：现场可用性研究。

Usability, Acceptability, and Preliminary Effectiveness of a Peer-Delivered and Technology-Supported Mental Health Intervention for Family Caregivers of People With Dementia: Field Usability Study.

机构信息

Department of Psychological and Brain Sciences, Dartmouth College, Hanover, NH, United States.

Department of Psychology, University of Colorado, Colorado Springs, Colorado Springs, CO, United States.

出版信息

JMIR Hum Factors. 2024 May 27;11:e41202. doi: 10.2196/41202.

DOI:10.2196/41202

PMID:38801660

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11165281/

Abstract

BACKGROUND

Family caregivers of people with dementia are critical to the quality of life of care recipients and the sustainability of health care systems but face an increased risk of emotional distress and negative physical and mental health outcomes.

OBJECTIVE

The purpose of this study was to examine the usability, acceptability, and preliminary effectiveness of a technology-based and caregiver-delivered peer support program, the Caregiver Remote Education and Support (CARES) smartphone or tablet app.

METHODS

A total of 9 adult family caregivers of people with dementia received the CARES intervention, and 3 former family caregivers of people with dementia were trained to deliver it. Quantitative data were collected at baseline and at the end of the 2-week field usability study. Qualitative data were also collected at the end of the 2-week field usability study.

RESULTS

The field usability study demonstrated that a 2-week peer-delivered and technology-supported mental health intervention designed to improve burden, stress, and strain levels was experienced by former and current family caregivers of people with dementia as acceptable. Current family caregivers rated CARES as above average in usability, whereas the caregiver peer supporters rated CARES as marginally usable. CARES was associated with non-statistically significant improvements in burden, stress, and strain levels.

CONCLUSIONS

This field usability study demonstrated that it is possible to train former family caregivers of people with dementia to use technology to deliver a mental health intervention to current family caregivers of people with dementia. Future studies would benefit from a longer trial; a larger sample size; a randomized controlled design; and a control of covariables such as stages of dementia, years providing care, and severity of dementia symptoms.

摘要

背景

痴呆症患者的家庭照顾者对照顾对象的生活质量和医疗保健系统的可持续性至关重要，但他们面临着情绪困扰以及身心健康恶化风险增加的问题。

目的

本研究旨在检验一种基于技术且由照顾者提供的同伴支持计划（即 caregiver Remote Education and Support，CARES）智能手机或平板电脑应用程序的可用性、可接受性和初步效果。

方法

共有 9 名痴呆症患者的成年家庭照顾者接受了 CARES 干预，3 名曾照顾过痴呆症患者的家庭照顾者接受了培训以提供该干预。在基线和为期 2 周的现场可用性研究结束时收集定量数据，并在现场可用性研究结束时收集定性数据。

结果

现场可用性研究表明，为期 2 周的由同伴提供且基于技术的心理健康干预旨在改善负担、压力和紧张程度，该干预被痴呆症患者的现职和前任家庭照顾者认为是可接受的。现职家庭照顾者对 CARES 的可用性评价高于平均水平，而照顾者同伴支持者则认为 CARES 的可用性仅略高于平均水平。CARES 与负担、压力和紧张程度的非统计学显著改善相关。