Poulsen Adam, Song Yun Jc, Fosch-Villaronga Eduard, LaMonica Haley M, Iannelli Olivia, Alam Mafruha, Hickie Ian B
Brain and Mind Centre, The University of Sydney, Sydney, Australia.
eLaw Center for Law and Digital Technologies, Leiden University, Leiden, Netherlands.
Digit Health. 2024 May 28;10:20552076241257058. doi: 10.1177/20552076241257058. eCollection 2024 Jan-Dec.
Digital technology has the potential to support or infringe upon human rights. The ubiquity of mobile technology in low- and middle-income countries (LMICs) presents an opportunity to leverage mobile health (mHealth) interventions to reach remote populations and enable them to exercise human rights. Yet, simultaneously, the proliferation of mHealth results in expanding sensitive datasets and data processing, which risks endangering rights. The promotion of digital health often centers on its role in enhancing rights and health equity, particularly in LMICs. However, the interplay between mHealth in LMICs and digital rights is underexplored. The objective of this scoping review is to bridge this gap and identify digital rights topics in the 2022 literature on mHealth in Southeast Asian LMICs. Furthermore, it aims to highlight the importance of patient empowerment and data protection in mHealth and related policies in LMICs.
This review follows Arksey and O'Malley's framework for scoping reviews. Search results are reported using the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews) checklist. Frequency and content analyses were applied to summarize and interpret the data.
Three key findings emerge from this review. First, the digital rights topics covered in the literature are sparse, sporadic, and unsystematic. Second, despite significant concerns surrounding data privacy in Southeast Asian LMICs, no article in this review explores challenges to data privacy. Third, all included articles state or allude to the role of mHealth in advancing the right to health.
Engagement in digital rights topics in the literature on mHealth in Southeast Asian mHealth is limited and irregular. Researchers and practitioners lack guidance, collective understanding, and shared language to proactively examine and communicate digital rights topics in mHealth in LMIC research. A systematic method for engaging with digital rights in this context is required going forward.
数字技术有可能支持或侵犯人权。移动技术在低收入和中等收入国家(LMICs)的普及为利用移动健康(mHealth)干预措施覆盖偏远人群并使其能够行使权利提供了契机。然而,与此同时,移动健康的扩散导致敏感数据集和数据处理不断扩大,这有危及权利的风险。数字健康的推广往往侧重于其在增强权利和健康公平方面的作用,尤其是在低收入和中等收入国家。然而,低收入和中等收入国家移动健康与数字权利之间的相互作用尚未得到充分探讨。本范围综述的目的是填补这一空白,并在2022年关于东南亚低收入和中等收入国家移动健康的文献中识别数字权利主题。此外,它旨在强调患者赋权和数据保护在低收入和中等收入国家移动健康及相关政策中的重要性。
本综述遵循阿克西和奥马利的范围综述框架。使用PRISMA-ScR(系统评价和Meta分析扩展的范围综述的首选报告项目)清单报告搜索结果。应用频率和内容分析来总结和解释数据。
本综述得出三个关键发现。第一,文献中涵盖的数字权利主题稀少、零散且不系统。第二,尽管东南亚低收入和中等收入国家对数据隐私存在重大担忧,但本综述中没有一篇文章探讨数据隐私面临的挑战。第三,所有纳入的文章都陈述或暗示了移动健康在推进健康权方面的作用。
东南亚移动健康文献中对数字权利主题的涉及有限且不规律。研究人员和从业者缺乏指导、集体理解和共同语言,无法在低收入和中等收入国家的研究中积极审视和交流移动健康中的数字权利主题。未来需要一种在这种背景下涉及数字权利的系统方法。