Department of Nursing Science, University of Turku, Turku, Finland.
University of Turku FI and Wellbeing Services County of Southwest Finland, University of Turku FI, Turku University Hospital, Turku, Finland.
Support Care Cancer. 2024 May 31;32(6):396. doi: 10.1007/s00520-024-08545-9.
To identify and synthesise interactive digital tools used to support the empowerment of people with cancer and the outcomes of these tools.
A systematic literature review was conducted using PubMed, CINAHL, Web of Science, Cochrane, Eric, Scopus, and PsycINFO databases in May 2023. Inclusion criteria were patient empowerment as an outcome supported by interactive digital tools expressed in study goal, methods or results, peer-reviewed studies published since 2010 in cancer care. Narrative synthesis was applied, and the quality of the studies was assessed following Joanna Briggs Institute checklists.
Out of 1571 records screened, 39 studies published in 2011-2022 with RCT (17), single-arm trial (15), quasi-experimental (1), and qualitative designs (6) were included. A total of 30 interactive digital tools were identified to support empowerment (4) and related aspects, such as self-management (2), coping (4), patient activation (9), and self-efficacy (19). Significant positive effects were found on empowerment (1), self-management (1), coping (1), patient activation (2), and self-efficacy (10). Patient experiences were positive. Interactivity occurred with the tool itself (22), peers (7), or nurses (7), physicians (2), psychologists, (2) or social workers (1).
Interactive digital tools have been developed extensively in recent years, varying in terms of content and methodology, favouring feasibility and pilot designs. In all of the tools, people with cancer are either active or recipients of information. The research evidence indicates positive outcomes for patient empowerment through interactive digital tools. Thus, even though promising, there still is need for further testing of the tools.
识别和综合用于支持癌症患者赋权的互动数字工具，并综合这些工具的结果。
2023 年 5 月，使用 PubMed、CINAHL、Web of Science、Cochrane、Eric、Scopus 和 PsycINFO 数据库进行了系统文献回顾。纳入标准是将互动数字工具作为支持患者赋权的结果，这些结果体现在研究目标、方法或结果中，且为 2010 年后在癌症护理中发表的同行评议研究。采用叙述性综合方法，并按照 Joanna Briggs 研究所检查表评估研究质量。
在筛选出的 1571 条记录中，纳入了 2011 年至 2022 年发表的 39 项研究，其中包括 RCT（17 项）、单臂试验（15 项）、准实验（1 项）和定性设计（6 项）。共确定了 30 种用于支持赋权（4 种）和相关方面的互动数字工具，如自我管理（2 种）、应对（4 种）、患者激活（9 种）和自我效能（19 种）。在赋权（1 项）、自我管理（1 项）、应对（1 项）、患者激活（2 项）和自我效能（10 项）方面均发现了显著的积极效果。患者体验良好。互动发生在工具本身（22 项）、同行（7 项）或护士（7 项）、医生（2 项）、心理学家（2 项）或社会工作者（1 项）之间。
近年来，互动数字工具得到了广泛的发展，内容和方法各不相同，有利于可行性和试点设计。在所有工具中，癌症患者都是积极的或信息的接受者。研究证据表明，互动数字工具可提高患者的赋权程度。因此，尽管有前景，但仍需要进一步测试这些工具。
