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“这么说吧:离开它你真的活不下去”——数字技术在常规姑息治疗中的应用:一项对德国患者及其家庭照护者的探索性定性研究。

"Let's put it this way: you can't really live without it" - digital technologies in routine palliative care delivery: an explorative qualitative study with patients and their family caregivers in Germany.

机构信息

Center for Health Services Research, Faculty of Health Sciences Brandenburg, Brandenburg Medical School Theodor Fontane, Seebad 82/83, 15562, Rüdersdorf, Brandenburg, Germany.

Department of Oncology and Palliative Medicine, Brandenburg Medical School, Immanuel Klinik Rüdersdorf, 15562, Rüdersdorf, Brandenburg, Germany.

出版信息

BMC Health Serv Res. 2024 Jun 3;24(1):702. doi: 10.1186/s12913-024-11150-5.

Abstract

BACKGROUND

Despite ongoing efforts to integrate palliative care into the German healthcare system, challenges persist, particularly in areas where infrastructure does not fully support digital technologies (DT). The increasing importance of digital technology (DT) in palliative care delivery presents both opportunities and challenges.

OBJECTIVE

This study aimed to explore the perspectives and preferences of palliative care patients and their family caregivers regarding the use of DT in care delivery.

METHODS

An exploratory qualitative study was conducted using semi-structured interviews with palliative care patients and their family caregivers across various settings. Participants were selected through gatekeeper-supported purposive sampling. Interviews were analysed using structured qualitative content analysis.

RESULTS

Nineteen interviews were conducted.Three themes emerged: (1) Application of DTs in palliative care; (2) Potential of DTs; (3) Barriers to the use of DTs. Key findings highlighted the preference for real-time communication using DTs that participants are familiar with. Participants reported limited perceived value for digital transformation in the presence of in-person care. The study identified requirements for DT development and use in palliative care, including the need for direct and immediate functionality, efficiency in healthcare professional (HCP) work, and continuous access to services.

CONCLUSION

The findings highlight a demonstrate the importance of familiarity with DTs and real-time access for patients and their families. While DT can enhance palliative care efficiency and accessibility, its integration must complement, not replace, in-person interaction in palliative care. As DTs continue to grow in scope and use in palliative care, maintaining continued user engagement is essential to optimise their adoption and ensure they benefit patients and their caregivers.

摘要

背景

尽管德国医疗体系一直在努力整合姑息治疗,但仍存在挑战,特别是在基础设施不完全支持数字技术(DT)的领域。数字技术(DT)在姑息治疗中的应用越来越重要,这带来了机遇和挑战。

目的

本研究旨在探讨姑息治疗患者及其家属对 DT 在护理中的应用的看法和偏好。

方法

采用半结构式访谈法,在各种环境下对姑息治疗患者及其家属进行了探索性定性研究。通过门户型支持的目的性抽样选择参与者。采用结构化定性内容分析对访谈进行分析。

结果

共进行了 19 次访谈。出现了三个主题:(1)DT 在姑息治疗中的应用;(2)DT 的潜力;(3)使用 DT 的障碍。主要发现强调了使用患者熟悉的 DT 进行实时沟通的偏好。参与者报告说,在存在面对面护理的情况下,对数字化转型的感知价值有限。研究确定了姑息治疗中 DT 开发和使用的要求,包括对直接和即时功能、医疗保健专业人员(HCP)工作效率以及对服务的持续访问的需求。

结论

研究结果强调了患者及其家属对 DT 的熟悉程度和实时访问的重要性。虽然 DT 可以提高姑息治疗的效率和可及性,但它的整合必须补充,而不是取代姑息治疗中的面对面互动。随着 DT 在姑息治疗中的应用范围和使用不断扩大,保持持续的用户参与对于优化其采用并确保患者及其护理人员受益至关重要。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3789/11149286/cc9b2ab22664/12913_2024_11150_Fig1_HTML.jpg

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