School of Public Health, The University of Adelaide, Adelaide, South Australia, Australia.
College of Medicine and Public Health, Flinders University, Adelaide, South Australia, Australia.
Qual Life Res. 2024 Sep;33(9):2401-2416. doi: 10.1007/s11136-024-03702-3. Epub 2024 Jun 14.
The Measure Yourself Medical Outcome Profile (MYMOP) is an individualised tool designed for adults but used with children without any evidence of validation in this population. Individualised instruments are patient-specific rather than disease-specific and therefore can be applied across various health conditions. This study sought to adapt, and content validate the MYMOP for application in 7-11 year old children.
There were two main phases of the four iterations: expert consultation (three rounds) and interviews with child-parent pairs at the Outpatient clinics of a Children's Hospital. Thematic analysis was undertaken using an inductive, interpretative approach.
Four paediatricians completed the first survey, five paediatricians participated in the focus group, and four paediatric health-related quality of life (HRQOL) research experts completed the second survey. Several changes were recommended to the MYMOP by the expert groups. Twenty-five children (17 general medicine, and 8 diabetes/endocrine clinic) aged 7-11 years completed the draft paediatric MYMOP (P-MYMOP) and were interviewed. Results demonstrated that the majority of participants were able to identify their own problems and activity limitations, and all participants understood the 7-point faces scale. Most parents and children perceived that the P-MYMOP would be useful to complete before clinic appointments.
The P-MYMOP is the first content-validated generic individualised HRQOL measure for children 7-11 years old. Given that validation is an iterative process, further research to assess its feasibility, reliability, and construct validity is required.
Measure Yourself Medical Outcome Profile（MYMOP）是一种个体化工具，专为成年人设计，但在该人群中未经验证就用于儿童。个体化工具是针对患者的，而不是针对疾病的，因此可以应用于各种健康状况。本研究旨在对 MYMOP 进行改编和内容验证，以适用于 7-11 岁儿童。
在四个迭代过程中有两个主要阶段：专家咨询（三轮）和在儿童医院门诊对儿童-家长对进行访谈。采用归纳、解释性方法进行主题分析。
四名儿科医生完成了第一份调查，五名儿科医生参加了焦点小组，四名儿科健康相关生活质量（HRQOL）研究专家完成了第二份调查。专家小组建议对 MYMOP 进行了一些修改。25 名 7-11 岁的儿童（17 名普通医学，8 名糖尿病/内分泌诊所）完成了草稿儿科 MYMOP（P-MYMOP）并接受了访谈。结果表明，大多数参与者能够识别自己的问题和活动限制，所有参与者都理解 7 点脸谱量表。大多数家长和孩子认为在就诊前完成 P-MYMOP 将很有用。
P-MYMOP 是第一个针对 7-11 岁儿童的内容验证的通用个体化 HRQOL 测量工具。鉴于验证是一个迭代过程，需要进一步研究来评估其可行性、可靠性和结构有效性。
