为癌症做准备：对西班牙裔患者及其照顾者需求的定性研究
Preparing for Cancer: A Qualitative Study of Hispanic Patient and Caregiver Needs.
作者信息
Rosario-Ramos Lianel, Torres-Marrero Stephanie, Rivera Tiffany, Navedo Maria Elena, Burgos Rosael, Garriga Mayra, Del Carmen Pacheco Maria, Lopez Betsy, Torres Yamilet, Torres-Blasco Normarie
机构信息
School of Behavioral and Brain Sciences, Ponce Health Sciences University, Ponce 00716, Puerto Rico.
Department of Medicine, University of Connecticut, Storrs, CT 06269, USA.
出版信息
Healthcare (Basel). 2024 May 30;12(11):1117. doi: 10.3390/healthcare12111117.
BACKGROUND
Cancer disproportionately affects Hispanic populations, yet the preparedness of Hispanic caregiver-patient dyads facing cancer remains understudied. This study aims to identify essential components of preparedness needs and inform future psychosocial interventions for this demographic.
METHODS
Secondary analyses were conducted utilizing focus groups to develop a communication intervention for Hispanic patients and caregivers. Transcripts were qualitatively analyzed using NVivo v12 (2020).
RESULTS
Analysis revealed symptom management and treatment comprehension as pivotal aspects of preparation. Additionally, preparedness among our sample emerged by addressing the multifaceted dimensions of preparedness, including psychological, emotional, educational, familial, practical, financial, and spiritual aspects.
CONCLUSIONS
Tailoring interventions encompassing diverse dimensions of preparedness can foster inclusivity and maximize their impact on supportive measures. This underscores the necessity for culturally sensitive approaches when delivering interventions supporting Hispanic individuals navigating the challenges of cancer.
背景
癌症对西班牙裔人群的影响尤为严重，但西班牙裔癌症患者与照顾者面对癌症时的准备情况仍未得到充分研究。本研究旨在确定准备需求的关键组成部分，并为针对这一人群的未来心理社会干预提供参考。
方法
利用焦点小组进行二次分析，以开发针对西班牙裔患者和照顾者的沟通干预措施。使用NVivo v12（2020）对转录本进行定性分析。
结果
分析表明，症状管理和治疗理解是准备工作的关键方面。此外，通过解决准备工作的多方面维度，包括心理、情感、教育、家庭、实际、财务和精神方面，我们样本中的准备工作得以显现。
结论
量身定制涵盖准备工作不同维度的干预措施可以促进包容性，并最大限度地提高其对支持性措施的影响。这凸显了在提供支持西班牙裔个体应对癌症挑战的干预措施时，采用文化敏感方法的必要性。
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