Redley Marcus, Poland Fiona, Hoe Juanita, Dening Tom, Stanyon Miriam, Yates Jen, Streater Amy, Coleston-Shields Dons, Orrell Martin
Department of Psychology, Anglia Ruskin University, Cambridge CB11PT, UK.
School of Health Sciences, University of East Anglia, Norwich NR4 7TJ, UK.
Healthcare (Basel). 2024 May 30;12(11):1122. doi: 10.3390/healthcare12111122.
Family caregivers are vital to enabling people with dementia to live longer in their own homes. For these caregivers, chatting with clinicians-being listened to empathetically and receiving reassurance-can be seen as not incidental but important to supporting them. This paper considers and identifies the significance of this relational work for family carers by re-examining data originally collected to document caregivers' perspectives on quality in crisis response teams. This reveals that chatting, for family caregivers, comprises three related features: (i) that family caregivers by responding to a person's changing and sometimes challenging needs and behaviors inhabit a precarious equilibrium; (ii) that caregivers greatly appreciate 'chatting' with visiting clinicians; and (iii) that while caregivers appreciate these chats, they can be highly critical of the institutionalized character of a crisis response team's involvement with them.
家庭照顾者对于使患有痴呆症的人能够在自己家中更长时间地生活至关重要。对于这些照顾者来说，与临床医生聊天——被给予同理心倾听并得到安慰——对支持他们而言并非偶然之事，而是很重要的。本文通过重新审视最初收集的用以记录照顾者对危机应对团队服务质量看法的数据，来考量并确定这种关系工作对家庭照顾者的重要性。这表明，对家庭照顾者来说，聊天包含三个相关特征：（i）家庭照顾者通过应对一个人不断变化且有时具有挑战性的需求和行为，处于一种不稳定的平衡状态；（ii）照顾者非常感激与来访临床医生“聊天”；（iii）虽然照顾者感激这些聊天，但他们可能对危机应对团队与他们接触的制度化特点持高度批评态度。
