纤维肌痛通过其症状的(不可见)性及其诊断和治疗的挑战。

The (in)visibility of fibromyalgia through its symptoms and the challenges of its diagnosis and therapy.

机构信息

Universidade Federal do Rio de Janeiro. Rio de Janeiro, Rio de Janeiro, Brazil.

出版信息

Rev Bras Enferm. 2024 Jun 14;77(2):e20230363. doi: 10.1590/0034-7167-2023-0363. eCollection 2024.

Abstract

OBJECTIVE

To analyze the social representations of fibromyalgia based on its symptoms and their influences on diagnosis and therapy.

METHODS

Qualitative research with the application of the Theory of Social Representations and snowball sampling method. Semi-structured interviews were conducted with 30 adults diagnosed with fibromyalgia in the city of Rio de Janeiro, Brazil, between April 2020 and January 2021. Statistical and lexicographical analysis was performed using Alceste software.

RESULTS

Pain, as a subjective phenomenon, complicates its legitimacy, diagnosis, and therapy, enhancing suffering. Insufficient information generates judgments, stereotypes, and prejudices.

FINAL CONSIDERATIONS

Stigmas, prejudices, the variety and invisibility of symptoms make it difficult to objectify the disease within the Cartesian-biomedical frameworks, generating diagnostic pilgrimage, mistakes, and challenges in treatment. Such representations hinder relationships and the management of the disease. Deconstructing them is a way to better care for those with fibromyalgia. Raising awareness and spreading qualified information are important allies.

摘要

目的

基于纤维肌痛的症状分析其社会表征及其对诊断和治疗的影响。

方法

采用社会表征理论和滚雪球抽样法的定性研究。2020 年 4 月至 2021 年 1 月,在巴西里约热内卢市对 30 名被诊断患有纤维肌痛的成年人进行了半结构式访谈。使用 Alceste 软件对统计和词汇分析进行了处理。

结果

疼痛作为一种主观现象,使其合法化、诊断和治疗变得复杂,加剧了痛苦。信息不足导致判断、刻板印象和偏见。

结论

污名、偏见、症状的多样性和不可见性使得在笛卡尔-生物医学框架内客观化疾病变得困难,从而导致诊断上的朝圣、错误和治疗上的挑战。这些表现阻碍了人际关系和疾病的管理。解构这些表现是更好地照顾纤维肌痛患者的一种方式。提高认识和传播合格的信息是重要的盟友。

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