Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel, Jette, Belgium.
End-of-Life Care Research Group, Vrije Universiteit Brussel and Ghent University, Jette and Ghent, Belgium.
Palliat Med. 2024 Oct;38(9):1000-1009. doi: 10.1177/02692163241261207. Epub 2024 Jun 25.
Significantly fewer individuals with migration backgrounds than native-born individuals undertake advance care planning. Older adults with Turkish and Moroccan backgrounds represent one of the largest ageing non-Western minority groups in Europe. Their relatives could play important roles in facilitating or hindering advance care planning, but their views remain underexplored.
To explore advance care planning knowledge, experience, views, facilitators and barriers among older Turkish and Moroccan adults' relatives in Belgium.
Qualitative thematic analysis of semi-structured interview data.
SETTING/PARTICIPANTS: Twenty-two relatives of older Turkish and Moroccan adults in Brussels, Mechelen and Antwerp, recruited via general practitioners.
Participants had limited advance care planning knowledge and had not discussed it with healthcare professionals. Some found discussing end-of-life preferences with relatives beneficial; others opposed the discussion of specific topics or felt discussions were unnecessary, as they felt responsible for caregiving and trusted by their relatives to make future decisions. Barriers included personal and relational characteristics, emotional difficulty and perceived non-urgency. Facilitators included information in older adults' native languages, general practitioners' cautious initiation and the involvement of several family members.
Relatives of older people with Turkish and Moroccan backgrounds are unfamiliar with advance care planning and have highly variable views on it. People should be given opportunities to discuss advance care planning in a culturally appropriate manner, and the diversity of perspectives regarding whether and how to engage in such planning should be recognised.ClinicalTrials.gov no. NCT05241301.
与本土出生的人相比，具有移民背景的人进行预先护理规划的人数明显较少。土耳其和摩洛哥背景的老年人是欧洲最大的非西方少数民族之一。他们的亲属在促进或阻碍预先护理规划方面可以发挥重要作用，但他们的观点仍未得到充分探索。
探讨比利时老年土耳其和摩洛哥成年人亲属的预先护理规划知识、经验、观点、促进因素和障碍。
对布鲁塞尔、梅赫伦和安特卫普的 22 名土耳其和摩洛哥老年人亲属的半结构化访谈数据进行定性主题分析。
设置/参与者：通过全科医生招募了 22 名老年土耳其和摩洛哥成年人的亲属。
参与者对预先护理规划的知识有限，并且没有与医疗保健专业人员讨论过。一些人认为与亲属讨论临终偏好是有益的；其他人则反对讨论具体话题，或者认为讨论是不必要的，因为他们觉得自己有责任照顾亲人，并被亲人信任做出未来的决定。障碍包括个人和关系特征、情绪困难和感知的非紧迫性。促进因素包括老年人母语的信息、全科医生的谨慎启动以及多名家庭成员的参与。
具有土耳其和摩洛哥背景的老年人亲属对预先护理规划不熟悉，对其看法也存在很大差异。应该为人们提供机会以文化上适当的方式讨论预先护理规划，并且应该认识到关于是否以及如何参与这种规划的观点多样性。ClinicalTrials.gov 编号：NCT05241301。
