Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel, Brussels, Belgium.
End-of-Life Care Research Group, Vrije Universiteit Brussel and Ghent University, Brussels, Belgium.
J Pain Symptom Manage. 2021 Aug;62(2):252-259. doi: 10.1016/j.jpainsymman.2020.12.017. Epub 2020 Dec 29.
Although conversations about future medical treatment and end-of-life care are considered to be important, ethnic minorities are much less engaged in advance care planning (ACP).
To explore ACP knowledge, experiences, views, facilitators, and barriers among older adults of Turkish origin in Belgium.
This qualitative study was based on constant comparative analysis of semistructured interview content. Participants were 33 older adults (aged 65-84 years; mean, 71.7 years; median, 74.5 years) of Turkish origin living in Belgium.
Despite unfamiliarity with the term ACP in this sample, several participants had engaged in some ACP behaviors. Respondents considered ACP to be useful and were ready to engage in conversations about it. The most commonly mentioned facilitator was the provision of tailored information about ACP. Other facilitators included concerns about future care needs, increasing awareness among respondents' children about the advantages of ACP, and respondents' desire to avoid "burdening" their children. The most commonly mentioned barrier was respondents' lack of knowledge about ACP. Other barriers were language issues, a lack of urgency about ACP discussion, reliance on familial support, and older adults' fear of triggering negative emotions in themselves and their children.
The provision of tailored information about ACP to older adults of Turkish origin in Belgium and the promotion of awareness about the importance of ACP among their children (when patients desire), as well as the use of professional interpreters, could facilitate ACP engagement in this population.
尽管人们认为讨论未来的医疗和临终关怀很重要，但少数民族参与预先医疗指示（ACP）的程度要低得多。
探索比利时土耳其裔老年人对 ACP 的知识、经验、观点、促进因素和障碍。
本定性研究基于对半结构化访谈内容的持续比较分析。参与者为 33 名居住在比利时的土耳其裔老年人（年龄 65-84 岁；平均年龄 71.7 岁；中位数年龄 74.5 岁）。
尽管在这个样本中，ACP 这个术语不熟悉，但有几个参与者已经进行了一些 ACP 行为。受访者认为 ACP 是有用的，并准备好进行有关 ACP 的对话。最常提到的促进因素是提供有关 ACP 的定制化信息。其他促进因素包括对未来护理需求的关注、增加受访者子女对 ACP 优势的认识，以及受访者希望避免“给”子女带来负担的愿望。最常提到的障碍是受访者对 ACP 的了解不足。其他障碍包括语言问题、对 ACP 讨论缺乏紧迫性、依赖家庭支持，以及老年人对自身和子女产生负面情绪的恐惧。
向比利时的土耳其裔老年人提供有关 ACP 的定制化信息，并促进其子女（当患者有意愿时）对 ACP 重要性的认识，以及使用专业翻译，都可以促进该人群参与 ACP。
