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开发一种具有文化增强功能的照顾者促进语言营养干预措施“+语言即医学”,以解决 Diné(纳瓦霍)幼儿的发育迟缓问题。

Development of a culturally enhanced caregiver-facilitated language nutrition intervention "+Language is Medicine" to address developmental delay in Diné (Navajo) toddlers.

机构信息

Center for Indigenous Health, Department of International Health, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, United States.

Center for Diné Studies, Diné College, Shiprock, NM, United States.

出版信息

Front Public Health. 2024 Jun 19;12:1376742. doi: 10.3389/fpubh.2024.1376742. eCollection 2024.

Abstract

INTRODUCTION

Developmental Delay (DD) is highly common in American Indian and Alaska Native (AI/AN; Indigenous) toddlers and leads to high numbers of AI/AN children who eventually need special education services. AI/AN children are 2.89 times more likely to receive special education compared to other children in the U.S., yet developmental disorders are more frequently under diagnosed and untreated in AI/AN infants and toddlers. DD, which can be identified as early as toddlerhood, can lead to negative impacts on developmental trajectories, school readiness, and long-term health. Signs of DD can be identified early with proper developmental screening and remediated with high quality early intervention that includes effective parent training. There are many evidence-based language facilitation interventions often used in Early Intervention programs. However, in communities in rural parts of the Navajo Nation where there are limited services and resources, infants and toddlers with early signs of DD are often missed and do not get the culturally responsive support and evidence-based intervention they deserve.

METHODS

The community-based +Language is Medicine (+LiM) study team partnered with tribal home visitors, community members, and a Diné linguist/elder using a collaborative virtual workgroup approach in 2021 and 2022 to present the +LiM pilot study aims and to discuss strategies for enhancing a language intervention for toddlers experiencing DD in their tribal community. This paper will detail the stages of community engagement, intervention enhancement and preparation for field testing of the +LiM intervention to address elevated rates of DD in toddlers in the Northern Agency of the Navajo Nation.

RESULTS

Two major outcomes from this collaborative workgroup included: (1) a team-initiated redefining of language nutrition to align with Indigenous values that center cultural connectedness and native language use and (2) a five-lesson caregiver-facilitated curriculum titled +Language is Medicine which includes caregiver lessons on language nutrition, language facilitation, shared book reading, pretend play, and incorporation of native language into home routines. These two workgroup outcomes were leveraged to develop a pilot pre-/post-intervention study to test the effectiveness of the +LiM intervention with caregiver-toddler dyads living on the Navajo Nation.

DISCUSSION

Delivering tailored child interventions through tribal home visiting are cost-effective and innovative methods for reaching reservation-based families who benefit from culturally responsive parent coaching and instruction. The +LiM team has applied a precision tribal home visiting approach to enhance methods of early intervention for children with DD. Our enhancement process was grounded in Indigenous community-based participatory research that centered culture and language.

摘要

简介

发育迟缓(DD)在美国印第安人和阿拉斯加原住民(AI/AN;土著)幼儿中非常常见,导致大量 AI/AN 儿童最终需要特殊教育服务。与美国其他儿童相比,AI/AN 儿童接受特殊教育的可能性高出 2.89 倍,但发育障碍在 AI/AN 婴儿和幼儿中更常被漏诊和未得到治疗。DD 早在幼儿期就可以被识别出来,如果进行适当的发育筛查并通过高质量的早期干预进行干预,其中包括有效的家长培训,就可以对发育轨迹、入学准备和长期健康产生负面影响。通过适当的发育筛查可以早期识别 DD 迹象,并通过包括有效家长培训在内的高质量早期干预进行治疗。早期干预计划中经常使用许多基于证据的语言促进干预措施。然而,在纳瓦霍民族的农村社区,服务和资源有限,因此,有早期 DD 迹象的婴儿和幼儿往往被忽视,无法获得他们应得的文化响应支持和基于证据的干预。

方法

社区为基础的+语言是医学(+LiM)研究团队于 2021 年和 2022 年与部落家访者、社区成员和一位 Diné 语言学家/长者合作,使用协作虚拟工作组方法,提出了+LiM 试点研究的目标,并讨论了增强部落社区中发育迟缓的幼儿语言干预策略。本文将详细介绍社区参与、干预措施增强以及+LiM 干预措施现场测试的准备阶段,以解决纳瓦霍民族北部机构幼儿 DD 率升高的问题。

结果

该协作工作组的两个主要成果包括:(1)团队发起的重新定义语言营养,使其与以文化联系和母语使用为中心的土著价值观保持一致;(2)一个五节由照顾者实施的课程,题为+语言是医学,其中包括关于语言营养、语言促进、共享阅读、假装游戏和将母语融入家庭常规的照顾者课程。这两个工作组的成果被利用来开发一个试点预/后干预研究,以测试+LiM 干预措施对居住在纳瓦霍民族的照顾者-幼儿对的有效性。

讨论

通过部落家访提供量身定制的儿童干预措施是一种具有成本效益的创新方法,可以为受益于文化响应式家长指导和指导的保留地家庭提供服务。+LiM 团队应用了一种精确的部落家访方法来增强对发育迟缓儿童的早期干预方法。我们的增强过程基于以文化和语言为中心的基于社区的参与式研究。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/86d7/11219906/9b2fac7b4bbc/fpubh-12-1376742-g001.jpg

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