Section of Hygiene, Department of Life Sciences & Public Health, Università Cattolica del Sacro Cuore, Rome, 00168, Italy.
Section Community Genetics, Department of Human Genetics & APH research institute, Amsterdam UMC, location Vrije Universiteit, Amsterdam, 91105, The Netherlands.
Per Med. 2024;21(3):163-166. doi: 10.1080/17410541.2024.2342770. Epub 2024 Jul 4.
In the transformative landscape of healthcare, personalized medicine emerges as a pivotal shift, harnessing genetic, environmental and lifestyle data to tailor medical treatments for enhanced outcomes and cost efficiency. Central to its success is public engagement and consent to share health data amidst rising data privacy concerns. To investigate European public opinion on this paradigm, we executed a comprehensive cross-sectional survey to capture the general public's views on personalized medicine and data-sharing modalities, including digital tools and electronic records. The survey was distributed in eight major European Union countries and the results aim at guiding future policymaking and trust-building measures for secure health data exchange. This article delineates our methodological approach, whereby survey findings will be expounded in subsequent publications.
在医疗保健领域的变革性景观中，个性化医疗作为一个关键的转变出现了，它利用遗传、环境和生活方式数据来定制医疗治疗，以提高治疗效果和成本效率。其成功的关键是公众参与和同意在数据隐私日益受到关注的情况下共享健康数据。为了研究欧洲公众对此模式的看法，我们进行了一项全面的横断面调查，以了解公众对个性化医疗和数据共享模式的看法，包括数字工具和电子记录。该调查在八个主要的欧盟国家进行，其结果旨在为安全的健康数据交换指导未来的政策制定和信任建立措施。本文阐述了我们的方法学方法，后续出版物将详细阐述调查结果。
