Division of Child and Adolescent Psychiatry, Department of Psychiatry and Mental Health, Centre for Autism Research in Africa, University of Cape Town, Rondebosch, Cape Town, 7700, South Africa.
J Autism Dev Disord. 2019 Nov;49(11):4468-4481. doi: 10.1007/s10803-019-04176-w.
Despite the need for parent education and training programmes in autism spectrum disorder (ASD), there is no generally-accepted evaluation framework to select programmes for different settings. Here we generated an evaluation framework using a multi-stakeholder, implementation science approach. Purposive sampling identified ASD experts, implementation/health systems experts, and parents/carers of individuals with ASD. A consensus-building stakeholder workshop with 14 stakeholders and thematic analysis was used to generate themes and components of the framework. Main themes included 'Outcomes' (parent, child, family and community), 'Processes and Procedures' (accessibility, acceptability, psychological process, and referral pathways) and 'Implementation Landscape' (sustainability, scalability, integration and coordination, and monitoring and evaluation). We propose that the evaluation framework and Evaluation Framework Checklist generated could guide clinicians, researchers and policy-makers.
尽管自闭症谱系障碍 (ASD) 需要家长教育和培训计划，但目前还没有普遍接受的评估框架来为不同环境选择计划。在这里，我们使用多利益相关者、实施科学的方法生成了一个评估框架。有针对性的抽样确定了 ASD 专家、实施/卫生系统专家以及 ASD 个体的父母/照顾者。通过 14 位利益相关者的共识建立利益相关者研讨会和主题分析，生成框架的主题和组成部分。主要主题包括“结果”（父母、孩子、家庭和社区）、“过程和程序”（可及性、可接受性、心理过程和转介途径）以及“实施情况”（可持续性、可扩展性、整合和协调以及监测和评估）。我们提出，生成的评估框架和评估框架检查表可以为临床医生、研究人员和政策制定者提供指导。
