根据护理人员和医疗保健专业人员的意见，社区儿科医疗保健中儿童与家庭健康研究的优先主题。
Priority topics for child and family health research in community-based paediatric health care according to caregivers and health care professionals.
作者信息
Eaton Andrea, Dyson Michele P, Gokiert Rebecca, Rajani Hasu, O'Neill Marcus, Ladha Tehseen, Zhang Mona, Birken Catherine S, Maguire Jonathon L, Ball Geoff D C
机构信息
Department of Pediatrics, Faculty of Medicine and Dentistry, University of Alberta, Edmonton, Alberta, Canada.
School of Public Health, University of Alberta, Edmonton, Alberta, Canada.
出版信息
Paediatr Child Health. 2023 Jan 5;28(3):158-165. doi: 10.1093/pch/pxac106. eCollection 2023 Jun.
BACKGROUND
Patient-oriented research (POR) aligns research with stakeholders' priorities to improve health services and outcomes. Community-based health care settings offer an opportunity to engage stakeholders to determine the most important research topics to them. Our objectives were to identify unanswered questions that stakeholders had regarding any aspect of child and family health and prioritize their 'top 10' questions.
METHODS
We followed the James Lind Alliance (JLA) priority setting methodology in partnership with stakeholders from the Northeast Community Health Centre (NECHC; Edmonton, Canada). We partnered with stakeholders (five caregivers, five health care professionals [HCPs]) to create a steering committee. Stakeholders were surveyed in two rounds (n = 125 per survey) to gather and rank-order unanswered questions regarding child and family health. A final priority setting workshop was held to finalize the 'top 10' list.
RESULTS
Our initial survey generated 1,265 submissions from 100 caregivers and 25 HCPs. Out of scope submissions were removed and similar questions were combined to create a master list of questions (n = 389). Only unanswered questions advanced (n = 108) and were rank-ordered through a second survey by 100 caregivers and 25 HCPs. Stakeholders (n = 12) gathered for the final workshop to discuss and finalize the 'top 10' list. Priority questions included a range of topics, including mental health, screen time, COVID-19, and behaviour.
CONCLUSION
Our stakeholders prioritized diverse questions within our 'top 10' list; questions regarding mental health were the most common. Future patient-oriented research at this site will be guided by priorities that were most important to caregivers and HCPs.
背景
以患者为导向的研究（POR）使研究与利益相关者的优先事项保持一致，以改善卫生服务和成果。基于社区的医疗保健环境为让利益相关者参与确定对他们来说最重要的研究主题提供了机会。我们的目标是识别利益相关者在儿童和家庭健康的任何方面存在的未解决问题，并对他们的“十大”问题进行排序。
方法
我们与东北社区健康中心（NECHC；加拿大埃德蒙顿）的利益相关者合作，遵循詹姆斯·林德联盟（JLA）的优先事项设定方法。我们与利益相关者（五名照顾者、五名医疗保健专业人员[HCPs]）合作成立了一个指导委员会。对利益相关者进行了两轮调查（每次调查n = 125），以收集并对有关儿童和家庭健康的未解决问题进行排序。举行了一次最终的优先事项设定研讨会，以确定“十大”清单。
结果
我们的初始调查收到了100名照顾者和25名HCPs提交的1265份意见。剔除超出范围的意见，并将类似问题合并，形成了一份问题总清单（n = 389）。只有未解决的问题进入下一轮（n = 108），并由100名照顾者和25名HCPs通过第二次调查进行排序。12名利益相关者参加了最终研讨会，讨论并确定了“十大”清单。优先问题包括一系列主题，如心理健康、屏幕使用时间、2019冠状病毒病和行为。
结论
我们的利益相关者在我们的“十大”清单中对各种问题进行了排序；关于心理健康的问题最为常见。该地点未来以患者为导向的研究将以对照顾者和HCPs最重要的优先事项为指导。
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