Speciality of Child and Adolescent Health, University of Sydney, Faculty of Medicine and Health, Sydney, New South Wales, Australia.
School of Public Health, University of Sydney, Faculty of Medicine and Health, Sydney, New South Wales, Australia.
BMJ Open. 2024 Jul 13;14(7):e086999. doi: 10.1136/bmjopen-2024-086999.
This scoping review aimed to identify and critically appraise resources for health professionals to identify, diagnose, refer, and support individuals with fetal alcohol spectrum disorder (FASD)-including the extent to which the resources are appropriate for use in communities with First Nations Peoples.
Seven peer-reviewed databases (April 2022) and 14 grey literature websites (August 2022) were searched. The reference lists of all sources that underwent full-text review were handsearched, and FASD experts were consulted for additional sources. Resources were assessed using the Appraisal of Guidelines for REsearch and Evaluation II instrument and an adapted version of the National Health and Medical Research Council FORM Framework and iCAHE Guideline Quality Checklist.
A total of 41 resources underwent data extraction and critical appraisal, as screening and/or diagnosis guidelines were excluded because they are covered in other reviews. Most were recently published or updated (n=24), developed in the USA (n=15, 36.6%) or Australia (n=12, 29.3%) and assisted with FASD patient referral or support (n=40). Most management guidelines scored 76%-100% on overall quality assessment (n=5/9) and were recommended for use in the Australian context with modifications (n=7/9). Most of the guides (n=15/22) and factsheets (n=7/10) received a 'good' overall score. Few (n=3/41) resources were explicitly designed for or with input from First Nations Australians.
High-quality resources are available to support health professionals providing referrals and support to individuals with FASD, including language guides. Resources should be codesigned with people living with FASD to capture and integrate their knowledge and preferences.
本范围综述旨在确定和批判性评估面向卫生专业人员的资源，以识别、诊断、转介和支持胎儿酒精谱系障碍（FASD）个体，包括这些资源在第一民族人群中使用的适宜程度。
检索了 7 个同行评议数据库（2022 年 4 月）和 14 个灰色文献网站（2022 年 8 月）。对所有经过全文审查的来源的参考文献进行了手工检索，并向 FASD 专家咨询了其他来源。使用评估指南研究和评价 II 工具以及国家卫生和医学研究委员会 FORM 框架和 iCAHE 指南质量检查表的改编版对资源进行了评估。
共有 41 项资源进行了数据提取和批判性评估，因为筛选和/或诊断指南被排除在外，因为它们在其他综述中已经涵盖。大多数资源是最近出版或更新的（n=24），在美国（n=15，36.6%）或澳大利亚（n=12，29.3%）开发，并协助 FASD 患者转介或支持（n=40）。大多数管理指南在整体质量评估中获得了 76%-100%的评分（n=5/9），并建议在澳大利亚背景下进行修改后使用（n=7/9）。大多数指南（n=15/22）和情况说明书（n=7/10）获得了“良好”的总体评分。很少有资源（n=3/41）是专门为或由澳大利亚原住民设计或输入的。
有高质量的资源可用于支持为 FASD 个体提供转介和支持的卫生专业人员，包括语言指南。资源应与患有 FASD 的人共同设计，以获取和整合他们的知识和偏好。
