Australian Catholic University, Sydney, NSW, Australia.
J Appl Res Intellect Disabil. 2014 Jan;27(1):23-33. doi: 10.1111/jar.12080. Epub 2013 Dec 1.
There is comparatively little published research that transparently charts the contribution of people with an intellectual disability to a collaborative research process. This paper illustrates the process of data analysis in a project located within the Emancipatory Disability Research (EDR) paradigm.
Textual data was made available from a participatory action research project involving young people who have Down syndrome. A university based researcher analysed a portion of the data set using thematic networks with the participation of co-researchers in iterative cycles of reflexivity.
The participation of the co-researchers is demonstrated and a global theme, deduced from the collaborative analysis, is described.
Authentic participation of co-researchers in the data analysis stage of the research process is an example of 'inclusive research' and assures adherence to the principles of EDR in informing the theory and practice of social inclusion for young adults with an intellectual disability.
There are not many research projects which include people with an intellectual disability in data analysis. This paper tells the story of how a small group of people with Down syndrome called co-researchers, joined in analysing data from their peers in a research project.
The co-researchers worked in a group. They took some copies of typed up interviews, underlined words and made notes on parts of the interview they found interesting and important.
Through their work, the co-researchers found that being involved with other people and having friends is important but can be hard sometimes.
This work is important as it shows the abilities of some people with Down syndrome in data analysis work. The co-researchers were included in research that is about themselves and other people with intellectual disabilities.
很少有发表的研究能够透明地展示智障人士对协作研究过程的贡献。本文展示了一项位于解放残疾研究范式内的项目的数据分析过程。
参与唐氏综合征青年的参与式行动研究项目提供了文本数据。一名基于大学的研究人员使用主题网络分析了部分数据集，共同研究人员在反思性迭代循环中参与其中。
展示了共同研究人员的参与，并描述了从协作分析中推断出的一个总体主题。
共同研究人员在研究过程的数据分析阶段的真实参与是“包容性研究”的一个例子，并确保了在告知智力残疾青年社会包容的理论和实践时，遵循解放残疾研究的原则。
很少有研究项目将智障人士纳入数据分析中。本文讲述了一个由几名唐氏综合征患者组成的小组，称为共同研究人员，他们如何参与分析一个研究项目中同龄人的数据。
共同研究人员以小组形式工作。他们复印了一些采访记录，在他们认为有趣和重要的采访部分下划线并做了笔记。
通过他们的工作，共同研究人员发现参与他人和拥有朋友很重要，但有时也很困难。
这项工作很重要，因为它展示了一些唐氏综合征患者在数据分析工作中的能力。共同研究人员参与了与自身和其他智障人士有关的研究。
