Centre for Disability Studies, University of Sydney, Sydney, NSW, Australia.
J Appl Res Intellect Disabil. 2014 Jan;27(1):65-75. doi: 10.1111/jar.12074. Epub 2013 Dec 21.
Inclusive research with people with intellectual disabilities is growing internationally but with few studies examining its feasibility.
In undertaking a national study exploring what life was like in Ireland for people with intellectual disabilities, a community of practice was developed involving a core group of co-researchers: five people with intellectual disabilities, four university researchers and three service support staff. An additional cadre of 15 co-researchers with intellectual disabilities was recruited to undertake data gathering and analysis with 23 focus groups involving 168 participants. The research experience was documented through oral feedback, progress reports, minutes and a project review.
The key learning is documented arising from the setting up of an inclusive advisory group and implementation of each of six research steps. The study demonstrates feasibility and the added value of university co-researchers recruiting and developing skills together with co-researchers with intellectual disabilities. Topics for further research and development are identified. This paper tells you about how people with intellectual disabilities worked with a group of university researchers. Both groups were called co-researchers and together they ran 23 focus groups across Ireland. People with intellectual disabilities talked about their lives and what could make them better. They said they needed to have a good place to live; a job; enough money; relationships; and acceptance as respected citizens. The university co-researchers wrote about what it was like doing research together and how people with intellectual disabilities joined the advisory group; decided on the questions; ran focus groups; and presented findings. Together they grew into a community of researchers where the university co-researchers shared their research skills and people with intellectual disabilities shared what it was like living with a disability. They both saw great value in working together and plan to work more to make this type of research happen.
包容性研究在国际上越来越多地涉及智力障碍人士，但很少有研究探讨其可行性。
在进行一项全国性研究，以了解爱尔兰智力障碍人士的生活状况时，成立了一个实践共同体，其中包括核心小组成员：五名智力障碍人士、四名大学研究人员和三名服务支持人员。还招募了另外 15 名智力障碍共同研究者，他们与 23 个焦点小组的 168 名参与者一起进行数据收集和分析。研究经验通过口头反馈、进度报告、会议记录和项目审查来记录。
本文记录了从成立包容性咨询小组到实施六个研究步骤的关键学习成果。该研究证明了可行性以及大学共同研究者与智力障碍共同研究者一起招募和培养技能的附加价值。确定了进一步研究和发展的主题。本文介绍了智力障碍人士如何与一组大学研究人员合作。这两个群体都被称为共同研究者，他们一起在爱尔兰举办了 23 个焦点小组。智力障碍人士谈论了他们的生活以及如何使他们的生活变得更好。他们表示，他们需要有一个好的居住场所、一份工作、足够的钱、人际关系和作为受尊重公民的认可。大学共同研究者撰写了一起进行研究的体验，以及智力障碍人士如何加入咨询小组、决定问题、开展焦点小组和呈现研究结果。他们共同成长为一个研究人员社区，在这个社区中，大学共同研究者分享他们的研究技能，智力障碍人士分享生活在残疾中的体验。他们都看到了共同合作的巨大价值，并计划开展更多工作，使这种类型的研究成为可能。
