Faculty of Vocational Studies, Universitas Airlangga, Surabaya, Indonesia.
School of Health Sciences, Universiti Sains Malaysia, Malaysia.
PLoS One. 2024 Jul 30;19(7):e0303331. doi: 10.1371/journal.pone.0303331. eCollection 2024.
The psychological burden is greatly felt by people living with tuberculosis because the characteristics of the disease are very visible and very contagious, and the obligation to take the right dose of medication with long treatment. This is what makes tuberculosis a very stigmatic disease. The aim of this research is to explore the psychological burden felt by people living with tuberculosis due to social stigma by society and how coping efforts are made. This research uses a qualitative phenomenological design through in-depth face-to-face interviews which take place in a semi-structured manner with the hope of obtaining complete data. The purposive sampling method was used in this research with Participatory Interpretative Phenomenology analysis involving 25 participants consisting of 16 men and 9 women. This research produced several themes, including 1) "The Perception of stigma limiting space and time", 2) "The Opportunities for interpersonal interaction become narrow", 3) "The mental stress as a challenging emotion", and 4) " Expanding coping efforts". The psychological burden is felt by people living with tuberculosis because society's treatment is felt to be very discriminatory due to the social stigma that has developed in society so they lose the opportunity to interact with society. For that reason, they tried to explore some of the personal and environmental resources used to modify adaptive coping in resolving perceived psychological burdens. Given the possibility of ongoing stigma and discrimination during tuberculosis treatment programs, it is important to consider the psychological burden in this context, both on the general population and on groups affected by stigma.
结核病患者承受着巨大的心理负担，因为这种疾病的特征非常明显且具有很强的传染性，而且还必须按照正确的剂量服用长期药物。这就是结核病成为一种非常具有耻辱感的疾病的原因。本研究旨在探讨由于社会对结核病患者的污名化以及他们如何应对这种污名化而产生的心理负担。本研究采用定性现象学设计，通过深入的面对面访谈，以半结构化的方式进行，希望获得完整的数据。本研究采用了目的性抽样方法，参与者包括 25 名男性和 9 名女性，共 16 名男性和 9 名女性。本研究产生了几个主题，包括 1）“污名化限制了空间和时间的感知”，2）“人际交往的机会变得狭窄”，3）“精神压力是一种具有挑战性的情绪”，以及 4）“扩展应对策略”。由于社会上存在的污名化，社会对结核病患者的治疗方式被认为是非常歧视性的，这让他们感到心理负担沉重，因为他们失去了与社会互动的机会。因此，他们试图探索一些个人和环境资源，以调整适应性应对策略，从而解决感知到的心理负担。鉴于在结核病治疗过程中持续存在污名化和歧视的可能性，考虑到这方面的心理负担，无论是对普通人群还是对受污名化影响的群体来说，都非常重要。
