Alizadeh Neda, Packer Tanya L, Jaswal Sabrena, Sturkenboom Ingrid, Warner Grace
Dalhousie University, Halifax, Nova Scotia, Canada.
Umeå University, Umeå, Sweden.
OTJR (Thorofare N J). 2024 Oct;44(4):632-641. doi: 10.1177/15394492241262740. Epub 2024 Jul 31.
Fatigue is common, but under-recognized in Parkinson's disease (PD), with limited treatment options. The aim of this study is to explore the experience of people with PD (PwPD) regarding content and delivery of the individual Packer Managing Fatigue program. This mixed-method study ( = 12) was conducted concurrently with a pilot randomized controlled trial. Data were collected using questionnaires, interviews, and focus groups. Five themes emerged: the program is helpful; the program has strengths; areas for improvement; individual online delivery is feasible; and more support from occupational therapist would be helpful. Quantitative findings confirmed feasibility with high ratings on questionnaires and confidence to use learned strategies. The findings inform future implementation of the Packer Managing Fatigue program and contribute to understanding the needs of PwPD. Future studies might explore program's effectiveness as stand-alone treatment or in combination with other approaches. Tailoring fatigue programs to PwPD's unique needs and characteristics of PD fatigue is suggested.
疲劳在帕金森病（PD）中很常见，但却未得到充分认识，治疗选择也有限。本研究的目的是探讨帕金森病患者（PwPD）对个性化的帕克疲劳管理计划的内容和实施方式的体验。这项混合方法研究（n = 12）与一项试点随机对照试验同时进行。通过问卷调查、访谈和焦点小组收集数据。出现了五个主题：该计划很有帮助；该计划有优点；有待改进的方面；个体在线实施是可行的；职业治疗师提供更多支持会有帮助。定量研究结果证实了该计划的可行性，问卷调查评分很高，且患者对使用所学策略有信心。这些发现为帕克疲劳管理计划的未来实施提供了参考，并有助于了解帕金森病患者的需求。未来的研究可以探索该计划作为单独治疗方法或与其他方法联合使用的有效性。建议根据帕金森病患者的独特需求和帕金森病疲劳的特点量身定制疲劳管理计划。
