Guardino Katrina, Gaerlan Malaya, Pinotti Caitlan S, Burnett Kimberly R, Kofoed Deborah, Schanberg Laura Eve, Hightow-Weidman Lisa B, Randell Rachel L
Duke University School of Medicine, Durham, North Carolina, USA.
Stanford University, Stanford, California, USA.
Lupus Sci Med. 2024 Jul 31;11(2):e001305. doi: 10.1136/lupus-2024-001305.
Paediatric systemic lupus erythematosus (pSLE) management and research could be enhanced by a mobile health application (app); however, no app designed for pSLE is currently available. A development and design committee comprising of patients, parents/caregivers and other stakeholders met to inform development and design of an app specific for pSLE. This meeting report summarises the group's discussions and recommendations that could help create a useful and desirable app or mobile health tool for the pSLE community.
移动健康应用程序（app）可改善儿童系统性红斑狼疮（pSLE）的管理与研究；然而，目前尚无专门为pSLE设计的应用程序。一个由患者、父母/照顾者及其他利益相关者组成的开发与设计委员会召开会议，为一款针对pSLE的应用程序的开发与设计提供信息。本会议报告总结了该小组的讨论内容与建议，这些内容有助于为pSLE群体创建一个实用且受欢迎的应用程序或移动健康工具。
