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移动医疗应用程序在系统性红斑狼疮和狼疮性肾炎中的应用:批判性评价。

Mobile health apps for systemic lupus erythematosus and lupus nephritis: a critical appraisal.

机构信息

Biomedical Engineering Department, University of Houston, 3517 Cullen Blvd., Room 2027, Houston, TX, USA.

出版信息

Arthritis Res Ther. 2022 May 14;24(1):110. doi: 10.1186/s13075-022-02791-0.

DOI:10.1186/s13075-022-02791-0
PMID:35568874
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9107137/
Abstract

OBJECTIVES

To critically assess the quality and functionality of the available mobile apps for systemic lupus erythematosus and lupus nephritis patients.

METHODS

Two reviewers independently searched the App Store and Google Play Store for eligible mobile health (mHealth) apps. Two separate searches were done: one for systemic lupus erythematosus (SLE) and the other for lupus nephritis (LN). The Mobile App Rating Scale (MARS) was used to rate the quality of all selected apps.

RESULTS

From the systemic lupus erythematosus screening, our search yielded 841 apps. Within these 841 apps, 17 of them were ultimately included. From the lupus nephritis screening, our search returned 1152 apps. Of the 1152 apps, 2 were ultimately included. Our search strategy included apps specifically designed for patients with SLE and LN. The MARS average of all the systemic lupus erythematosus apps was 2.7 out of 5. The MARS average of the two lupus nephritis apps was 2.6 out of 5.

CONCLUSION

Mobile health apps can serve as an effective tool for telehealth, engaging patients in self-care and for increasing the quality of life of lupus patients. While several mobile health technologies exist for patients with SLE and LN, there is still a significant need for app quality improvement and expanding the comprehensiveness of offered functions.

摘要

目的

批判性评估现有用于红斑狼疮和狼疮性肾炎患者的移动应用程序的质量和功能。

方法

两位评审员独立搜索 App Store 和 Google Play Store 中符合条件的移动健康 (mHealth) 应用程序。进行了两次独立搜索:一次是红斑狼疮 (SLE),另一次是狼疮肾炎 (LN)。使用移动应用程序评级量表 (MARS) 对所有选定的应用程序进行质量评分。

结果

从系统性红斑狼疮筛查中,我们的搜索共产生了 841 个应用程序。在这 841 个应用程序中,最终有 17 个被纳入。从狼疮肾炎筛查中,我们的搜索返回了 1152 个应用程序。在这 1152 个应用程序中,最终有 2 个被纳入。我们的搜索策略包括专门为 SLE 和 LN 患者设计的应用程序。所有系统性红斑狼疮应用程序的 MARS 平均得分为 2.7 分(满分 5 分)。这两个狼疮肾炎应用程序的 MARS 平均得分为 2.6 分(满分 5 分)。

结论

移动健康应用程序可以作为远程医疗的有效工具,使患者参与自我护理,并提高狼疮患者的生活质量。虽然有几种针对 SLE 和 LN 患者的移动健康技术,但仍需要改进应用程序质量并扩大提供功能的全面性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/dad9/9107137/081cfc7efad3/13075_2022_2791_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/dad9/9107137/70d9af11d07b/13075_2022_2791_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/dad9/9107137/081cfc7efad3/13075_2022_2791_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/dad9/9107137/70d9af11d07b/13075_2022_2791_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/dad9/9107137/081cfc7efad3/13075_2022_2791_Fig2_HTML.jpg

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