Rhoten Bethany, Tree Jennifer M Jabson, David Kurt, Boehmer Uli, Scout Nfn
Vanderbilt University School of Nursing, 461 21st Avenue South, Nashville, TN, 37240, USA.
Department of Public Health, Purdue University, West Lafayette, IN, USA.
J Cancer Surviv. 2024 Aug 5. doi: 10.1007/s11764-024-01650-y.
The purpose of our study was to identify and describe determinants of lesbian and bisexual breast cancer survivors' post-treatment resources.
We used a cross-sectional descriptive study design. The data reported here were gathered as part of OUT: The National Cancer Survey, administered electronically from September 2020 to March 2021 via social media and community partners. We used descriptive statistics, Fisher's exact tests, and thematic analysis to analyze survivor perceptions of information availability, treatment environment, care plans, social support, and health.
Of those who participated in the survey, (N =430) 366 identified as lesbian, and 64 identified as bisexual. Mean age was 58.6 years (range 21 - 91 years). Fewer than 11% of our sample indicated they could find helpful information about being a queer person with cancer during their treatment. Over 75% of our sample that received a cancer survivorship care plan indicated that their plan did not include resources for queer individuals.
Affirming cancer treatment environments and resources tailored to the needs of lesbian and bisexual breast cancer survivors are critical for reducing disparities.
Survivorship care plans should include resources for queer individuals as a part of holistic cancer care.
我们研究的目的是确定并描述女同性恋和双性恋乳腺癌幸存者治疗后资源的决定因素。
我们采用了横断面描述性研究设计。此处报告的数据是作为“OUT:全国癌症调查”的一部分收集的,该调查于2020年9月至2021年3月通过社交媒体和社区合作伙伴以电子方式进行。我们使用描述性统计、费舍尔精确检验和主题分析来分析幸存者对信息可及性、治疗环境、护理计划、社会支持和健康的看法。
在参与调查的人中(N = 430),366人被认定为女同性恋者,64人被认定为双性恋者。平均年龄为58.6岁(范围21 - 91岁)。我们样本中不到11%的人表示,他们在治疗期间能够找到有关身为患癌同性恋者的有用信息。我们样本中超过75%接受癌症幸存者护理计划的人表示,他们的计划没有包括针对同性恋者的资源。
建立肯定性的癌症治疗环境以及提供符合女同性恋和双性恋乳腺癌幸存者需求的资源对于减少差异至关重要。
幸存者护理计划应将针对同性恋者的资源作为整体癌症护理的一部分。