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中文版癌症患儿家庭照顾者照顾负担量表的翻译与验证

Translation and validation of the caregiving burden scale for family caregivers of children with cancer in chinese population.

作者信息

Xu Xinyi, Yu Yating, Tang Li, Chen Qiurong, Xie Shuai, Cen Yao, Zhang Xian, Min Lihua, Mao Xiaorong

机构信息

School of Medicine, University of Electronic Science and Technology of China, Chengdu, 610072, China.

Department of Nursing, The Quzhou Affiliated Hospital of Wenzhou Medical University, Quzhou People's Hospital, Zhejiang, 324000, China.

出版信息

BMC Nurs. 2024 Aug 6;23(1):534. doi: 10.1186/s12912-024-02204-4.

DOI:10.1186/s12912-024-02204-4
PMID:39103791
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11302103/
Abstract

BACKGROUND

Effective response and reducing the burden of family care for children with cancer is critical, and China currently lacks a specific assessment tool.

AIMS

This study aimed to translate and validate the Caregiving Burden Scale for Family Caregivers of Children with Cancer (CBSFC-CC) and then test and implement the tool.

METHODS

According to the Beaton cross-cultural debugging guide, preliminary Chinese version of CBSFC-CC scale was formed, which was suitable for Chinese language environment and clinical context. Exploratory factor analyses (EFA) and confirmatory factor analyses (CFA) were performed to verify structural validity. Convergent validity, discriminant validity and reliability were also conducted.

RESULTS

A total of 529 family caregivers of children with cancer participated in the survey. EFA extracts and combines four factors and explained 65.80% of the total variation. CFA proved that all the goodness-of-fit indicators were acceptable. The Cronbach's alpha of the Chinese version of CBSFC-CC was .96, and the test-retest reliability coefficient was .95. Four dimensions and 29 items were identified in the final Chinese version of CBSFC-CC.

CONCLUSION

The chinese version CBSFC-CC is scientifically reasonable and has good reliability and validity, which can be applied to the investigation of the nursing burden of family caregivers of children with cancer in China.

摘要

背景

有效应对并减轻癌症患儿家庭护理负担至关重要,而中国目前缺乏特定的评估工具。

目的

本研究旨在翻译并验证癌症患儿家庭照顾者护理负担量表(CBSFC - CC),然后对该工具进行测试与应用。

方法

依据比顿跨文化调试指南,形成适用于中国语言环境和临床情境的CBSFC - CC量表初步中文版。进行探索性因子分析(EFA)和验证性因子分析(CFA)以验证结构效度,同时也进行了收敛效度、区分效度和信度分析。

结果

共有529名癌症患儿家庭照顾者参与调查。EFA提取并合并了四个因子,解释了总变异的65.80%。CFA证明所有拟合优度指标均可接受。CBSFC - CC中文版的克朗巴哈α系数为0.96,重测信度系数为0.95。最终的CBSFC - CC中文版确定了四个维度和29个条目。

结论

中文版CBSFC - CC科学合理,具有良好的信度和效度,可应用于中国癌症患儿家庭照顾者护理负担的调查。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96ff/11302103/41dcfe08ecbe/12912_2024_2204_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96ff/11302103/5cc3d728b9a6/12912_2024_2204_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96ff/11302103/41dcfe08ecbe/12912_2024_2204_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96ff/11302103/5cc3d728b9a6/12912_2024_2204_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96ff/11302103/41dcfe08ecbe/12912_2024_2204_Fig2_HTML.jpg

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本文引用的文献

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Financial hardship in families of children or adolescents with cancer: a systematic literature review.癌症患儿或青少年家庭的经济困难:系统文献综述。
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West J Nurs Res. 2022 Mar;44(3):328-337. doi: 10.1177/01939459211041170. Epub 2021 Sep 13.
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Caregiver burden: A concept analysis.照顾者负担:一项概念分析。
护理信息学能力量表中文版的心理测量学验证及影响因素分析
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Reliability and validity of the mandarin version of the supportive care needs survey short-form (SCNS-SF34) and the head and neck cancer-specific supportive care needs (SCNS-HNC) module.简体中文版支持性护理需求调查问卷短表(SCNS-SF34)和头颈部癌症特异性支持性护理需求(SCNS-HNC)模块的信度和效度。
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The effects of inflammatory bowel disease on caregivers: significant burden and loss of productivity.炎症性肠病对护理者的影响:巨大负担和生产力损失。
BMC Health Serv Res. 2020 Jun 18;20(1):556. doi: 10.1186/s12913-020-05425-w.
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Applying Collaborative Care Model on Intensive Caregiver Burden and Resilient Family Caregivers of Patients with Mental Disorders: A Randomized Controlled Trial.将协作护理模式应用于精神障碍患者的重症照护者负担及有复原力的家庭照护者:一项随机对照试验
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