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儿科康复服务的提供:讨论是消除脱节和不满的良药。

Pediatric rehabilitation delivery: discussion is an antidote to disconnection and discontent.

机构信息

ALYN Hospital Pediatric and Adolescent Rehabilitation Center, Jerusalem, Israel.

出版信息

Isr J Health Policy Res. 2024 Aug 6;13(1):35. doi: 10.1186/s13584-024-00619-7.

DOI:10.1186/s13584-024-00619-7
PMID:39107783
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11304651/
Abstract

Pediatric rehabilitation is fundamentally different from that of adults. Child physiology differs significantly from that of adults, necessitating specialized rehabilitation approaches. Unique injuries and varying metabolic rates underscore the need for tailored care, which changes over the years as the child grows and develops. Waiserberg's paper, "When Everyone is Responsible, No One Takes Responsibility": Exploring Pediatric Physiotherapy Services in Israel," sheds light on a critical issue. While senior practitioners oversee policy implementation and service delivery, practical physiotherapy treatment lacks continuous monitoring. This is a critical issue. Ideally, every child who requires long-term clinical therapeutic interventions to keep up with peers in mobility, communication and cognitive skills should be assessed by specialists several times throughout the school years, and their personalized rehabilitation plan discussed, reviewed, and adjusted according to their progress. The absence of a standardized protocol for overseeing and directing comprehensive rehabilitation plans leaves therapists feeling alone and adrift, whether working in schools or medical settings. Such an assessment would be an opportunity to create a registry, which is currently nonexistent. The collected data would be a priceless resource in policy decision-making and service planning.

摘要

儿科康复与成人康复有根本的不同。儿童的生理与成人有显著差异,需要专门的康复方法。独特的损伤和不同的代谢率强调了需要量身定制的护理,随着儿童的成长和发展,这种护理会逐年变化。Waiserberg 的论文《当每个人都有责任时,就没有人承担责任》:探索以色列的儿科物理治疗服务》,揭示了一个关键问题。虽然高级从业者负责监督政策的实施和服务的提供,但实际的物理治疗治疗缺乏持续的监测。这是一个关键问题。理想情况下,每个需要长期临床治疗干预以跟上同龄人在行动、沟通和认知技能方面的孩子,都应该在整个学年中由专家多次评估,并根据他们的进步讨论、审查和调整他们的个性化康复计划。缺乏监督和指导全面康复计划的标准化协议,使得治疗师无论是在学校还是医疗环境中都感到孤立无援。这样的评估将是创建注册表的机会,而目前还没有这样的注册表。收集的数据将是决策和服务规划的宝贵资源。

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本文引用的文献

1
Physical rehabilitation interventions in children with acquired brain injury: a scoping review.获得性脑损伤儿童的物理康复干预:范围综述。
Dev Med Child Neurol. 2022 Jan;64(1):40-48. doi: 10.1111/dmcn.14997. Epub 2021 Jul 26.
2
Multidisciplinary rehabilitation for patients with cerebral palsy: improving long-term care.脑瘫患者的多学科康复治疗:改善长期护理。
J Multidiscip Healthc. 2016 Sep 22;9:455-462. doi: 10.2147/JMDH.S88782. eCollection 2016.
3
Overview of Habilitation and Rehabilitation for Children and Adolescents in Europe.欧洲儿童和青少年康复治疗概述
J Pediatr. 2016 May;172:233-235.e2. doi: 10.1016/j.jpeds.2015.12.078.
4
The 'F-words' in childhood disability: I swear this is how we should think!儿童残疾领域的“F 字头词汇”:我发誓这就是我们应有的思考方式!
Child Care Health Dev. 2012 Jul;38(4):457-63. doi: 10.1111/j.1365-2214.2011.01338.x. Epub 2011 Nov 1.
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ICF-based classification and measurement of functioning.基于国际功能、残疾和健康分类的功能分类与测量
Eur J Phys Rehabil Med. 2008 Sep;44(3):315-28.