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一对一的癌症患者同伴辅导 - 一项试点研究的结果。

One-to-one peer-coaching for patients with cancer - results of a pilot study.

机构信息

Comprehensive-Cancer Centre Freiburg (CCCF), Department of Self-Help Research University Clinic, Medical Faculty of the Albert-Ludwigs University, Hugstetterstr. 49, Freiburg, 79106, Germany.

出版信息

J Cancer Res Clin Oncol. 2024 Aug 7;150(8):385. doi: 10.1007/s00432-024-05913-0.

Abstract

PURPOSE

Cancer is a life threatening disease with negative impact on quality of life and psychological well-being. In international studies, one-to-one peer support and counseling have been shown to improve the psychological well-being of cancer patients. In the study presented, we developed and evaluated an innovative program of peer-coaching. In this program at the University Hospital of Freiburg, cancer survivors were trained to support peers by sharing experience.

METHODS

In the project, N = 25 cancer survivors were trained to conduct supportive one-to-one conversations with acute patients or patients in aftercare. Based on a prospective observational study, patients were interviewed using questionnaires before and after the conversations. We assessed expectations and experiences with the peer-coaching as well as psychosocial parameters (PHQ9, GAD7, SSUK, NCCN-distress thermometer).

RESULTS

A total of 52 patients had at least one contact with a peer-coach. Most of the patients attended 1-3 sessions. In total, 85 contacts pairing peer-coaches with patients were conducted. Patients showed on average a high level of distress but a low rate of psychiatric comorbidity. The supportive conversations met the patients` needs. Sharing experiences and empowerment were the most relevant benefits for the patients. Both patients and trained peers showed high satisfaction levels with the program.

CONCLUSION

Our findings support the feasibility and utility of a peer-coaching program in which trained cancer survivors, acting as peer-coaches, support other patients during or after their oncological treatment. In a further study, the efficacy of peer-coaching should be investigated based on a randomized-controlled trial.

TRIAL REGISTRATION

The trial was registered in the German Clinical Trials Register (No. DRKS DRKS00017500) on 12.12.2019.

摘要

目的

癌症是一种危及生命的疾病,对生活质量和心理健康有负面影响。在国际研究中,一对一的同伴支持和咨询已被证明可以改善癌症患者的心理健康。在本研究中,我们开发并评估了一种创新的同伴辅导计划。在弗莱堡大学医院,癌症幸存者接受培训,通过分享经验来支持同龄人。

方法

在该项目中,有 25 名癌症幸存者接受培训,以与急性患者或康复患者进行支持性的一对一对话。基于前瞻性观察研究,在对话前后使用问卷对患者进行了访谈。我们评估了同伴辅导的期望和经验以及心理社会参数(PHQ9、GAD7、SSUK、NCCN 痛苦温度计)。

结果

共有 52 名患者与一名同伴辅导员至少有过一次接触。大多数患者参加了 1-3 次会议。总共进行了 85 次配对同伴辅导员和患者的接触。患者的平均压力水平较高,但精神共病率较低。支持性对话满足了患者的需求。分享经验和赋权是患者最关心的好处。患者和接受培训的同伴对该计划的满意度都很高。

结论

我们的发现支持了在癌症幸存者中实施同伴辅导计划的可行性和实用性,这些接受培训的癌症幸存者作为同伴辅导员,在癌症治疗期间或之后为其他患者提供支持。在进一步的研究中,应基于随机对照试验来调查同伴辅导的效果。

试验注册

该试验于 2019 年 12 月 12 日在德国临床试验注册处(注册号:DRKS DRKS00017500)注册。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/940a/11793555/ecccff832f99/432_2024_5913_Fig1_HTML.jpg

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