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饮食失调与自闭症协作项目大纲:促进在肯定神经多样性的文化中开展饮食失调研究。

Eating Disorder and Autism Collaborative project outline: promoting eating disorder research embedded in a neurodiversity-affirming culture.

作者信息

Duffy Fiona, Gillespie-Smith Karri, Sharpe Helen, Buchan Kyle, Nimbley Emy, Maloney Ellen, Sader Michelle, Kettley Sarah, Kerr-Gaffney Jess, Waiter Gordon, Tchanturia Kate

机构信息

University of Edinburgh, UK.

University of Aberdeen, UK.

出版信息

BJPsych Bull. 2024 Aug 8:1-6. doi: 10.1192/bjb.2024.61.

Abstract

EDAC (Eating Disorders and Autism Collaborative) is an innovative project aiming to increase research capacity by supporting collaboration in the fields of eating disorders and autism. EDAC comprises four integrated workstreams to co-produce interdisciplinary research, directed by Autistic individuals with lived experience of eating disorders. Workstream 1 will outline best collaborative practices, informing the research network. Workstream 2 will use arts-based methodologies to set research priorities, with emphasis on the perspectives of underrepresented groups. Workstream 3 will support interdisciplinary collaborations to develop innovative research. Finally, workstream 4 will maximise knowledge mobilisation with the aim of reducing barriers to rapid incorporation of research into policy and clinical practice. A core aim of EDAC is to embed a neurodiversity-affirming culture within eating disorder research and to support the development of a new generation of researchers conducting innovative and meaningful research with the potential to improve clinical outcomes.

摘要

饮食失调与自闭症协作组织(EDAC)是一个创新项目,旨在通过支持饮食失调和自闭症领域的合作来提高研究能力。EDAC由四个综合工作流组成,以共同开展跨学科研究,由有饮食失调生活经历的自闭症患者指导。工作流1将概述最佳协作实践,为研究网络提供信息。工作流2将使用基于艺术的方法来确定研究重点,重点关注代表性不足群体的观点。工作流3将支持跨学科合作以开展创新研究。最后,工作流4将最大限度地促进知识传播,以减少研究迅速纳入政策和临床实践的障碍。EDAC的一个核心目标是在饮食失调研究中融入一种肯定神经多样性的文化,并支持新一代研究人员的发展,他们开展具有创新意义且有可能改善临床结果的研究。

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