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: 自闭症女性、家长和医疗保健专业人员从自身视角出发对进食障碍服务的体验。

: The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals.

机构信息

Cardiff University, UK.

University College London, UK.

出版信息

Autism. 2021 Jul;25(5):1409-1421. doi: 10.1177/1362361321991257. Epub 2021 Feb 15.

Abstract

This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals.

摘要

本研究探讨了自闭症女性在饮食失调服务中的体验。大约 20%-30%的神经性厌食症患者也同时患有自闭症,而目前的治疗方法对他们似乎效果不佳。我们采访了 15 名有神经性厌食症经历的自闭症女性、12 名有厌食症的自闭症女性的父母和 11 名在饮食失调服务机构工作的医疗保健专业人员。我们询问了自闭症女性和父母关于他们在饮食失调服务中的体验,也询问了医疗保健专业人员关于他们治疗患有神经性厌食症的自闭症女性的经验。参与者的观点由三个总体主题代表:对自闭症和自闭症特征的误解、一种治疗方法并不适合所有人,以及提高服务的可及性和参与度。我们发现,自闭症女性在接受神经性厌食症治疗时面临许多障碍,这通常是由于饮食失调服务中缺乏对自闭症的理解。未来的研究应该着眼于开发专门针对自闭症个体的神经性厌食症治疗方法。

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Transgender Clients' Experiences of Eating Disorder Treatment.跨性别者饮食失调治疗的经历。
J LGBT Issues Couns. 2016;10(3):136-149. doi: 10.1080/15538605.2016.1177806. Epub 2016 May 16.
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Anorexia nervosa and autism: a prospective twin cohort study.神经性厌食症与自闭症:一项前瞻性双生子队列研究。
J Child Psychol Psychiatry. 2021 Mar;62(3):316-326. doi: 10.1111/jcpp.13265. Epub 2020 Jun 4.

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