Gimeno Laura, Zylbersztejn Ania, Cant Ayana, Harron Katie, Gilbert Ruth
Great Ormond Street Institute of Child Health, University College London, London, England, WC1N 1EH, UK.
Centre for Longitudinal Studies, Social Research Institute, University College London, London, England, WC1H 0NU, UK.
NIHR Open Res. 2024 May 1;4:26. doi: 10.3310/nihropenres.13558.1. eCollection 2024.
Neurodisability describes a broad set of conditions affecting the brain and nervous system which result in functional limitations. Children with neurodisability have more hospital admissions than their peers without neurodisability and higher rates of school absence. However, longitudinal evidence comparing rates of hospital admission and school absence in children with neurodisability to peers without neurodisability throughout school is limited, as is understanding about whether differences are greatest for planned care (e.g., scheduled appointments) or unplanned care. This study will describe rates of planned and unplanned hospital admissions and school absence due to illness and medical reasons throughout primary school (Reception to Year 6, ages 4 to 11 in England) for children with neurodisability and all other children, using linked individual-level health and education data.
We will use the ECHILD (Education and Child Insights from Linked Data) database, which links educational and health records across England. We will define a primary school cohort of children who were born in National Health Service-funded hospitals in England between 1 September 2003 and 31 August 2008, and who were enrolled in Reception (age 4/5) at state-funded schools. We will use hospital admissions records to identify children who have recorded indicators of neurodisability from birth up to the end of primary school (Year 6, age 10/11).
We will describe rates of planned and unplanned hospital admissions and health-related school absence for three groups of children: those with a neurodisability indicator first recorded before beginning primary school, those with neurodisability first recorded during primary school, and those without a record of neurodisability before end of primary school.
We will further explore whether differences between these group vary across primary school years and by socioeconomic and demographic characteristics.
神经残疾描述了一系列影响大脑和神经系统并导致功能受限的病症。患有神经残疾的儿童比没有神经残疾的同龄人住院次数更多,缺课率也更高。然而,关于患有神经残疾的儿童与没有神经残疾的同龄人在整个学校期间的住院率和缺课率比较的纵向证据有限,对于差异在计划护理(如预约就诊)还是非计划护理中是否最大也缺乏了解。本研究将利用个人层面的健康和教育关联数据,描述患有神经残疾的儿童和所有其他儿童在整个小学阶段(英国 Reception 到 6 年级,4 至 11 岁)因疾病和医疗原因的计划和非计划住院率以及缺课情况。
我们将使用 ECHILD(来自关联数据的教育与儿童洞察)数据库,该数据库将英格兰各地的教育和健康记录相链接。我们将定义一个小学队列,其中的儿童于 2003 年 9 月 1 日至 2008 年 8 月 31 日在英格兰国民保健服务资助的医院出生,并在公立学校就读 Reception(4/5 岁)。我们将利用住院记录来识别从出生到小学结束(6 年级,10/11 岁)有神经残疾指标记录的儿童。
我们将描述三组儿童的计划和非计划住院率以及与健康相关的缺课情况:那些在开始小学之前首次记录有神经残疾指标的儿童、那些在小学期间首次记录有神经残疾的儿童以及那些在小学结束前没有神经残疾记录的儿童。
我们将进一步探讨这些组之间的差异是否在小学各年级以及社会经济和人口特征方面有所不同。