Christen Aline, Benedetti Franzisca Domeisen, Händler-Schuster Daniela
Institute of Nursing School of Health Sciences, ZHAW Zurich University of Applied Sciences, Winterthur, Switzerland.
Institute of Nursing Science, Department of Nursing Science and Gerontology, UMIT TIROL Private University of Health Sciences and Health Technology, Hall in Tyrol, Austria.
Digit Health. 2024 Aug 16;10:20552076241271772. doi: 10.1177/20552076241271772. eCollection 2024 Jan-Dec.
Connected health services will change the scope of health professionals' roles. It is unclear how parents of a child with inflammatory bowel disease perceive the role of health professionals in relation to these services and what their experiences and needs are. The purpose of this study is to highlight parents' experiences with this role. Furthermore, it aims to outline the fundamental needs that parents have regarding this role, in order to promote audience-specific access to these services and derive overarching action measures.
Fourteen parents of children with inflammatory bowel disease from seven different clinics in Switzerland were recruited. Between August 2022 and February 2023, these parents were interviewed in semi-structured interviews. The interviews were analyzed using a structured qualitative content analysis.
Five main categories were identified, with few parents having prior experience with the role of health professionals in this area. Parents saw health professionals in the role of gatekeepers, transferers of knowledge and in a supporting function for these services. From the parents' perspective, health professionals should recognize the limitations of these services and use them as a complement to standard treatment.
The role of health professionals in relation to connected health services needs to be adapted from the parents' perspective. To meet the needs of parents, health professionals must have access to these services. In addition to health professionals' personal engagement with these services, institutional and policy changes, as well as research on role development from the perspective of other stakeholders are needed.
互联健康服务将改变医疗专业人员的角色范围。目前尚不清楚炎症性肠病患儿的父母如何看待医疗专业人员在这些服务中的角色，以及他们的经历和需求是什么。本研究的目的是突出父母在这一角色方面的经历。此外，它旨在概述父母对这一角色的基本需求，以促进针对特定受众的这些服务的获取，并得出总体行动措施。
招募了来自瑞士七个不同诊所的14名炎症性肠病患儿的父母。在2022年8月至2023年2月期间，对这些父母进行了半结构化访谈。采用结构化定性内容分析法对访谈进行分析。
确定了五个主要类别，很少有父母此前有过医疗专业人员在这一领域角色的经验。父母认为医疗专业人员在这些服务中扮演把关人、知识传授者和支持性角色。从父母的角度来看，医疗专业人员应该认识到这些服务的局限性，并将其作为标准治疗的补充。
从父母的角度来看，医疗专业人员在互联健康服务方面的角色需要调整。为了满足父母的需求，医疗专业人员必须能够使用这些服务。除了医疗专业人员个人参与这些服务外，还需要进行机构和政策变革，以及从其他利益相关者的角度对角色发展进行研究。
