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巴勒斯坦医疗保健中神经源性膀胱管理的评估:一项定性研究。

Evaluating Neurogenic Bladder Management in Palestinian Healthcare: A Qualitative Study.

作者信息

Sawafta Mothana, Abushamma Mohammad, Jallad Khaled

机构信息

Emergency Center, Jenin Governmental Hospital, Jenin, PSE.

Obstetrics and Gynaecology, Palestinian Medical Complex, Ramallah, PSE.

出版信息

Cureus. 2024 Jul 18;16(7):e64799. doi: 10.7759/cureus.64799. eCollection 2024 Jul.

Abstract

BACKGROUND

Neurogenic bladder (NB) is a prevalent urologic condition significantly impacting the health and quality of life of affected individuals. The condition, often resulting from various etiologies such as spinal cord injuries and multiple sclerosis, leads to severe life problems, including pain and impaired physical, mental, social, and emotional functioning. This study aims to explore the medical practices of urologists in the diagnosis, management, and care of NB patients within the Palestinian healthcare context, highlighting the absence of a unified treatment protocol and the reliance on private clinics for care.

METHODS

An exploratory qualitative study design was employed, adhering to the Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist. Structured interviews were conducted with 14 urologists and two urology residents across eight different cities in Palestine, including 10 governmental hospitals, two private hospitals, one university hospital, and one charity hospital. Fourteen doctors had private outpatient clinics alongside their work in hospitals. A questionnaire developed by the authors was delivered to specialists and residents to understand the evaluation, management, follow-up practices, and challenges faced in treating NB patients. The study focused on the diagnostic processes, treatment modalities, complications management, and the impact of the lack of standardized protocols on patient care. Our qualitative study consists of six major themes, each theme consisting of multiple sub-themes and different participant responses: (1) diagnosis and follow-up of NB patients; (2) general issues in the management of NB; (3) evaluation and follow-up of upper and lower urinary system function in NB patients; (4) urinary tract infections associated with NB disease and how to deal with it; (5) opinions and future attitudes in the treatment of NB patients; (6) NB in patients with multiple sclerosis.

RESULTS

The study found that urodynamic studies are crucial in NB diagnosis, yet there is no unified management protocol, leading to varied practices. Most participants preferred the American Urological Association (AUA) guidelines in the absence of Palestinian protocols. Six major themes emerged, including diagnosis and follow-up challenges, general issues in NB management, evaluation and follow-up of urinary system function, urinary tract infections management, opinions on future treatment directions, and specific considerations for NB patients with multiple sclerosis.

CONCLUSIONS

The study highlights the need for a unified, standardized protocol for the management of NB patients in Palestine. The reliance on international guidelines, primarily the AUA protocols, underscores the gap in local healthcare policies. The findings call for the establishment of national guidelines and enhanced resources for the effective management of NB, aiming to improve patient outcomes and quality of life.

摘要

背景

神经源性膀胱(NB)是一种常见的泌尿系统疾病,严重影响患者的健康和生活质量。该疾病通常由脊髓损伤和多发性硬化症等多种病因引起,会导致严重的生活问题,包括疼痛以及身体、心理、社会和情感功能受损。本研究旨在探讨巴勒斯坦医疗环境下泌尿科医生对NB患者的诊断、管理和护理的医疗实践,强调缺乏统一的治疗方案以及对私人诊所护理的依赖。

方法

采用探索性定性研究设计,遵循定性研究报告统一标准(COREQ)清单。对巴勒斯坦八个不同城市的14名泌尿科医生和两名泌尿外科住院医师进行了结构化访谈,这些城市包括10家政府医院、两家私立医院、一家大学医院和一家慈善医院。14名医生在医院工作的同时还拥有私人门诊诊所。作者编制的一份问卷被分发给专家和住院医师,以了解在治疗NB患者时的评估、管理、随访实践以及面临的挑战。该研究重点关注诊断过程、治疗方式、并发症管理以及缺乏标准化方案对患者护理的影响。我们的定性研究包括六个主要主题,每个主题由多个子主题和不同参与者的回答组成:(1)NB患者的诊断和随访;(2)NB管理中的一般问题;(3)NB患者上下泌尿系统功能的评估和随访;(4)与NB疾病相关的尿路感染及其处理方法;(5)对NB患者治疗的意见和未来态度;(6)多发性硬化症患者中的NB。

结果

研究发现尿动力学研究在NB诊断中至关重要,但目前尚无统一的管理方案,导致实践各异。在没有巴勒斯坦方案的情况下,大多数参与者倾向于美国泌尿外科学会(AUA)的指南。出现了六个主要主题,包括诊断和随访挑战、NB管理中的一般问题、泌尿系统功能的评估和随访、尿路感染管理、对未来治疗方向的意见以及对多发性硬化症NB患者的特殊考虑。

结论

该研究强调巴勒斯坦需要为NB患者制定统一、标准化的管理方案。对国际指南(主要是AUA方案)的依赖凸显了当地医疗政策的差距。研究结果呼吁制定国家指南并增加资源,以有效管理NB,旨在改善患者的治疗效果和生活质量。

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