Butanis Alessandra, Titanji Bosung, Bartee Ashley E, Giladi Aviram M, Means Kenneth R
The Curtis National Hand Center, MedStar Union Memorial Hospital, Baltimore, MD.
J Hand Surg Glob Online. 2024 Apr 8;6(4):601-604. doi: 10.1016/j.jhsg.2024.03.012. eCollection 2024 Jul.
Engaging patients and family members in formal feedback for health care processes can be impactful, especially when cultivating new care and research protocols. However, most surgical groups lack established systems for enlisting these critical stakeholders. This is a descriptive report of how we built our Patient and Family Advisory Council (PFAC) through a multistep process with patients, providers, research staff, and administrators. We also detail how it has advanced research, care, and mutually beneficial collaboration at our hand center. For example, our PFAC has provided vital input on multiple grant submissions, assisted with the development of a web-based digital application for thumb arthritis therapy, and improved our patient care approaches. To successfully create and sustain a PFAC, there must be commitment from multiple stakeholders across clinical, research, administration, and leadership spectra. Through this alliance, all stakeholders can develop better care and investigative strategies.
让患者和家属参与医疗保健过程的正式反馈可能会产生重大影响，尤其是在制定新的护理和研究方案时。然而，大多数外科团队缺乏招募这些关键利益相关者的既定系统。这是一份描述性报告，介绍了我们如何通过与患者、医护人员、研究人员和管理人员的多步骤流程建立患者和家属咨询委员会（PFAC）。我们还详细说明了它如何在我们的手部中心推进研究、护理和互利合作。例如，我们的PFAC为多项资助申请提供了重要意见，协助开发了用于拇指关节炎治疗的基于网络的数字应用程序，并改进了我们的患者护理方法。要成功创建并维持一个PFAC，临床、研究、行政和领导层面的多个利益相关者必须做出承诺。通过这种联盟，所有利益相关者都可以制定更好的护理和调查策略。
