Smith Kathryn P, Holmes Jenn, Shelley Jennifer
Health Transformation & Research, The MITRE Corporation, Bedford, MA 01730, United States.
Health Behavioral and Social Sciences, The MITRE Corporation, Bedford, MA 01730, United States.
J Am Med Inform Assoc. 2024 Dec 1;31(12):2962-2967. doi: 10.1093/jamia/ocae207.
Research participants value learning how their data contributions are advancing health research (ie, data stories). The All of Us Research Program gathered insights from program staff to learn what research topics they think are of interest to participants, what support staff need to communicate data stories, and how staff use data story dissemination tools.
Using an online 25-item assessment, we collected information from All of Us staff at 7 Federally Qualified Health Centers.
Topics of greatest interest or relevance included income insecurity (83%), diabetes (78%), and mental health (78%). Respondents prioritized in-person outreach in the community (70%) as a preferred setting to share data stories. Familiarity with available dissemination tools varied.
Responses support prioritizing materials for in-person outreach and training staff how to use dissemination tools.
The findings will inform All of Us communication strategy, content, materials, and staff training resources to effectively deliver data stories as return of value to participants.
研究参与者重视了解他们的数据贡献如何推动健康研究（即数据故事）。“我们所有人”研究项目从项目工作人员那里收集了见解，以了解他们认为参与者感兴趣的研究主题、工作人员在传达数据故事时需要哪些支持，以及工作人员如何使用数据故事传播工具。
我们通过一项包含25个项目的在线评估，从7家联邦合格健康中心的“我们所有人”项目工作人员那里收集了信息。
最受关注或最相关的主题包括收入不安全（83%）、糖尿病（78%）和心理健康（78%）。受访者将社区中的面对面宣传（70%）列为分享数据故事的首选方式。对现有传播工具的熟悉程度各不相同。
这些回答支持优先为面对面宣传准备材料，并培训工作人员如何使用传播工具。
这些发现将为“我们所有人”的沟通策略、内容、材料和工作人员培训资源提供参考，以便有效地将数据故事作为对参与者的价值回报进行传达。
