Melvin Cathy L, Harvey Jillian, Pittman Tara, Gentilin Stephanie, Burshell Dana, Kelechi Teresa
College of Medicine, Medical University of South Carolina, Charleston, SC, USA.
College of Health Professions/Healthcare Leadership & Management, Medical University of South Carolina, Charleston, SC, USA.
J Clin Transl Sci. 2020 Jan 20;4(3):233-242. doi: 10.1017/cts.2020.9.
Translating research findings into practice requires understanding how to meet communication and dissemination needs and preferences of intended audiences including past research participants (PSPs) who want, but seldom receive, information on research findings during or after participating in research studies. Most researchers want to let others, including PSP, know about their findings but lack knowledge about how to effectively communicate findings to a lay audience.
We designed a two-phase, mixed methods pilot study to understand experiences, expectations, concerns, preferences, and capacities of researchers and PSP in two age groups (adolescents/young adults (AYA) or older adults) and to test communication prototypes for sharing, receiving, and using information on research study findings.
PSP and researchers agreed that sharing study findings should happen and that doing so could improve participant recruitment and enrollment, use of research findings to improve health and health-care delivery, and build community support for research. Some differences and similarities in communication preferences and message format were identified between PSP groups, reinforcing the best practice of customizing communication channel and messaging. Researchers wanted specific training and/or time and resources to help them prepare messages in formats to meet PSP needs and preferences but were unaware of resources to help them do so.
Our findings offer insight into how to engage both PSP and researchers in the design and use of strategies to share research findings and highlight the need to develop services and support for researchers as they aim to bridge this translational barrier.
将研究成果转化为实践需要了解如何满足目标受众的沟通与传播需求及偏好，这些目标受众包括过去的研究参与者（PSP），他们希望在参与研究期间或之后获得研究结果的信息，但很少能如愿。大多数研究人员希望让包括PSP在内的其他人了解他们的研究结果，但缺乏如何有效地向普通受众传达研究结果的知识。
我们设计了一项两阶段的混合方法试点研究，以了解两个年龄组（青少年/青年（AYA）或老年人）的研究人员和PSP的经历、期望、担忧、偏好和能力，并测试用于分享、接收和使用研究结果信息的沟通原型。
PSP和研究人员一致认为应该分享研究结果，这样做可以改善参与者的招募和入组情况，利用研究结果改善健康和医疗服务，并建立社区对研究的支持。在PSP群体之间发现了沟通偏好和信息格式方面的一些差异和相似之处，这强化了定制沟通渠道和信息的最佳实践。研究人员希望获得特定的培训和/或时间及资源，以帮助他们以满足PSP需求和偏好的格式准备信息，但不知道有哪些资源可以帮助他们这样做。
我们的研究结果为如何让PSP和研究人员参与设计和使用分享研究结果的策略提供了见解，并强调在研究人员旨在跨越这一转化障碍时，需要为他们开发服务和支持。
