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改善化脓性汗腺炎的管理:来自医生和患者视角的共识陈述。

Improving hidradenitis suppurativa management: consensus statements from physicians and patients' perspectives.

机构信息

Dermatology Unit, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, Via Pace, 9, 20122, Milan, Italy.

Department of Pathophysiology and Transplantation, Università Degli Studi Di Milano, Via Pace, 9, 20122, Milan, Italy.

出版信息

Arch Dermatol Res. 2024 Aug 24;316(8):577. doi: 10.1007/s00403-024-03316-2.

DOI:10.1007/s00403-024-03316-2
PMID:39180694
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11344722/
Abstract

Hidradenitis suppurativa (HS) is a frequent chronic inflammatory skin condition primarily affecting areas rich in apocrine sweat glands, presenting with comedones, papules, nodules, and abscesses, as well as tunnels and hypertrophic scarring. Despite its prevalence and impact on quality of life, the pathogenesis of HS remains incompletely understood. Notably, its diagnosis often suffers from delays and misidentification, therefore an improved education for healthcare providers is mandatory. Moreover, HS is frequently associated with systemic comorbidities and a multidisciplinary approach is suggested for its management. Recognizing these challenges, a group of Italian HS experts and patients convened to develop consensus guidelines via the Nominal Group Technique. Through iterative meetings and remote collaboration, they identified key areas for improvement and formulated consensus statements to guide healthcare providers in delivering optimal care. This collaborative effort highlights the importance of standardized approaches and interdisciplinary collaboration in managing HS effectively.

摘要

化脓性汗腺炎(HS)是一种常见的慢性炎症性皮肤病,主要影响富含顶泌汗腺的区域,表现为粉刺、丘疹、结节和脓肿,以及瘘管和增生性瘢痕。尽管其患病率和对生活质量的影响很大,但 HS 的发病机制仍不完全清楚。值得注意的是,其诊断常常存在延迟和误诊,因此必须加强对医疗保健提供者的教育。此外,HS 常与全身性合并症相关,建议采用多学科方法进行管理。为了应对这些挑战,一组意大利 HS 专家和患者通过名义小组技术召集起来制定共识指南。通过迭代会议和远程协作,他们确定了需要改进的关键领域,并制定了共识声明,以指导医疗保健提供者提供最佳护理。这种合作努力强调了在有效管理 HS 方面采用标准化方法和跨学科合作的重要性。

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本文引用的文献

1
[Hidradenitis suppurativa].[化脓性汗腺炎]
Dermatologie (Heidelb). 2024 Jun;75(6):497-506. doi: 10.1007/s00105-024-05321-y. Epub 2024 Mar 21.
2
Clinical Features and Response to Treatment in Elderly Subjects Affected by Hidradenitis Suppurativa: A Cohort Study.化脓性汗腺炎老年患者的临床特征及治疗反应:一项队列研究
J Clin Med. 2023 Dec 18;12(24):7754. doi: 10.3390/jcm12247754.
3
Biologics for Hidradenitis suppurativa: evolution of the treatment paradigm.生物制剂治疗化脓性汗腺炎:治疗模式的演变。
Expert Rev Clin Immunol. 2024 May;20(5):525-545. doi: 10.1080/1744666X.2023.2298356. Epub 2024 Jan 2.
4
Hidradenitis Suppurativa: A Literature Review Comparing Current Therapeutic Modalities.化脓性汗腺炎:比较当前治疗方式的文献综述
Cureus. 2023 Aug 18;15(8):e43695. doi: 10.7759/cureus.43695. eCollection 2023 Aug.
5
Obstacles to Early Diagnosis and Treatment of Hidradenitis Suppurativa: Current Perspectives on Improving Clinical Management.化脓性汗腺炎早期诊断与治疗的障碍:改善临床管理的当前观点
Clin Cosmet Investig Dermatol. 2023 Jul 17;16:1833-1841. doi: 10.2147/CCID.S301794. eCollection 2023.
6
Assessing unmet needs in patients with hidradenitis suppurativa.评估化脓性汗腺炎患者的未满足需求。
Arch Dermatol Res. 2023 Nov;315(9):2555-2560. doi: 10.1007/s00403-023-02645-y. Epub 2023 Jun 1.
7
Hidradenitis Suppurativa: Molecular Etiology, Pathophysiology, and Management-A Systematic Review.化脓性汗腺炎:分子病因、病理生理学及管理——一项系统综述
Curr Issues Mol Biol. 2023 May 17;45(5):4400-4415. doi: 10.3390/cimb45050280.
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Overview and comparison of the clinical scores in hidradenitis suppurativa: A real-life clinical data.化脓性汗腺炎临床评分的概述与比较:真实临床数据
Front Med (Lausanne). 2023 Apr 17;10:1145152. doi: 10.3389/fmed.2023.1145152. eCollection 2023.
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Satisfaction with Life and Coping Strategies among Patients with Hidradenitis Suppurativa: A Cross-Sectional Study.化脓性汗腺炎患者的生活满意度及应对策略:一项横断面研究
J Clin Med. 2023 Apr 7;12(8):2755. doi: 10.3390/jcm12082755.
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The Development of Systemic Inflammatory Diseases in Hidradenitis Suppurativa.化脓性汗腺炎中全身炎症性疾病的发展
Diagnostics (Basel). 2023 Jan 30;13(3):502. doi: 10.3390/diagnostics13030502.