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以家庭为导向的心理治疗对遗传性血管性水肿管理的意义:病例系列

Implications of Family-Oriented Psychotherapy for Hereditary Angioedema Management: A Case Series.

作者信息

Kalladanthyil Abyson, Patel Ami J, Gogineni Rama R

机构信息

Psychiatry, Cooper Medical School of Rowan University, Camden, USA.

Internal Medicine, Cooper Medical School of Rowan University, Camden, USA.

出版信息

Cureus. 2024 Jul 27;16(7):e65526. doi: 10.7759/cureus.65526. eCollection 2024 Jul.

DOI:10.7759/cureus.65526
PMID:39188498
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11346827/
Abstract

The role of psychotherapy in the management of chronic conditions has been widely explored and supported. The current approach to the utilization of family-oriented psychotherapy in treatment plans is individualized to the patient and focused on the development of personal coping skills alongside identifying and changing negative thoughts, emotions, and behaviors. Alleviation of symptom burden, improvement in psychiatric co-morbidities like anxiety and depression, and enhancement of quality of life have all been found to be associated with incorporating family-oriented psychotherapy in the management of chronic conditions. In contrast, heritable conditions, such as hereditary angioedema (HAE), have not been the center of extensive research. Heritable conditions introduce a new category of stressors that require management like the anxiety of a parent, a sibling, a child, or another family member decompensating at the same time as oneself. Family-centered psychotherapy focuses on discussing the stressors of the family unit and the development of coping strategies to prevent the time course of one family member's condition from exacerbating another family member's condition. This model has been utilized for families with separate chronic conditions, but its role and effectiveness in managing inherited conditions have room for investigation. This paper presents a case series on a family engaging in family-centered psychotherapy for HAE.

摘要

心理治疗在慢性病管理中的作用已得到广泛探讨和支持。目前在治疗方案中运用以家庭为导向的心理治疗的方法是根据患者个体情况量身定制的,重点是培养个人应对技能,同时识别并改变消极的思维、情绪和行为。减轻症状负担、改善焦虑和抑郁等精神共病以及提高生活质量,都被发现与在慢性病管理中纳入以家庭为导向的心理治疗有关。相比之下,遗传性疾病,如遗传性血管性水肿(HAE),尚未成为广泛研究的核心。遗传性疾病引入了一类新的压力源,需要进行管理,比如父母、兄弟姐妹、孩子或其他家庭成员与自己同时病情恶化时产生的焦虑。以家庭为中心的心理治疗侧重于讨论家庭单元的压力源以及制定应对策略,以防止一个家庭成员的病情发展过程加剧另一个家庭成员的病情。这种模式已应用于患有不同慢性病的家庭,但其在管理遗传性疾病方面的作用和有效性仍有待研究。本文介绍了一个家庭接受以家庭为中心的HAE心理治疗的病例系列。

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本文引用的文献

1
Hereditary Angioedema: Impact of COVID-19 pandemic stress upon disease related morbidity and well-being.遗传性血管性水肿:COVID-19 大流行压力对疾病相关发病率和幸福感的影响。
Allergy Asthma Proc. 2023 Mar 1;44(2):115-121. doi: 10.2500/aap.2023.44.220096.
2
Hereditary Angioedema: Diagnosis, Clinical Implications, and Pathophysiology.遗传性血管性水肿:诊断、临床意义和病理生理学。
Adv Ther. 2023 Mar;40(3):814-827. doi: 10.1007/s12325-022-02401-0. Epub 2023 Jan 7.
3
Hereditary Angioedema: A Review.遗传性血管性水肿:综述。
WMJ. 2022 Apr;121(1):48-53.
4
New generation psychological treatments in chronic pain.新一代心理治疗慢性疼痛。
BMJ. 2022 Feb 28;376:e057212. doi: 10.1136/bmj-2021-057212.
5
Hereditary Angioedema.遗传性血管性水肿。
Emerg Med Clin North Am. 2022 Feb;40(1):99-118. doi: 10.1016/j.emc.2021.09.002. Epub 2021 Oct 29.
6
Evidence-based practice in cognitive-behavioural therapy.循证实践在认知行为疗法中的应用。
Arch Dis Child. 2022 Feb;107(2):109-113. doi: 10.1136/archdischild-2020-321249. Epub 2021 Jul 15.
7
Hereditary and acquired angioedema.遗传性血管性水肿和获得性血管性水肿。
Allergy Asthma Proc. 2019 Nov 1;40(6):441-445. doi: 10.2500/aap.2019.40.4267.
8
The impact of hereditary angioedema on quality of life and family planning decisions.
Int J Psychiatry Med. 2019 Nov;54(6):377-394. doi: 10.1177/0091217419837068. Epub 2019 Mar 29.
9
Psychological interventions for parents of children and adolescents with chronic illness.针对患有慢性病的儿童和青少年家长的心理干预措施。
Cochrane Database Syst Rev. 2019 Mar 18;3(3):CD009660. doi: 10.1002/14651858.CD009660.pub4.
10
Emotional processes and stress in children affected by hereditary angioedema with C1-inhibitor deficiency: a multicenter, prospective study.遗传性血管性水肿伴 C1 酯酶抑制剂缺乏患儿的情绪过程和应激:一项多中心前瞻性研究。
Orphanet J Rare Dis. 2018 Jul 13;13(1):115. doi: 10.1186/s13023-018-0871-x.