Suppr超能文献

以家庭为导向的心理治疗对遗传性血管性水肿管理的意义:病例系列

Implications of Family-Oriented Psychotherapy for Hereditary Angioedema Management: A Case Series.

作者信息

Kalladanthyil Abyson, Patel Ami J, Gogineni Rama R

机构信息

Psychiatry, Cooper Medical School of Rowan University, Camden, USA.

Internal Medicine, Cooper Medical School of Rowan University, Camden, USA.

出版信息

Cureus. 2024 Jul 27;16(7):e65526. doi: 10.7759/cureus.65526. eCollection 2024 Jul.

Abstract

The role of psychotherapy in the management of chronic conditions has been widely explored and supported. The current approach to the utilization of family-oriented psychotherapy in treatment plans is individualized to the patient and focused on the development of personal coping skills alongside identifying and changing negative thoughts, emotions, and behaviors. Alleviation of symptom burden, improvement in psychiatric co-morbidities like anxiety and depression, and enhancement of quality of life have all been found to be associated with incorporating family-oriented psychotherapy in the management of chronic conditions. In contrast, heritable conditions, such as hereditary angioedema (HAE), have not been the center of extensive research. Heritable conditions introduce a new category of stressors that require management like the anxiety of a parent, a sibling, a child, or another family member decompensating at the same time as oneself. Family-centered psychotherapy focuses on discussing the stressors of the family unit and the development of coping strategies to prevent the time course of one family member's condition from exacerbating another family member's condition. This model has been utilized for families with separate chronic conditions, but its role and effectiveness in managing inherited conditions have room for investigation. This paper presents a case series on a family engaging in family-centered psychotherapy for HAE.

摘要

心理治疗在慢性病管理中的作用已得到广泛探讨和支持。目前在治疗方案中运用以家庭为导向的心理治疗的方法是根据患者个体情况量身定制的,重点是培养个人应对技能,同时识别并改变消极的思维、情绪和行为。减轻症状负担、改善焦虑和抑郁等精神共病以及提高生活质量,都被发现与在慢性病管理中纳入以家庭为导向的心理治疗有关。相比之下,遗传性疾病,如遗传性血管性水肿(HAE),尚未成为广泛研究的核心。遗传性疾病引入了一类新的压力源,需要进行管理,比如父母、兄弟姐妹、孩子或其他家庭成员与自己同时病情恶化时产生的焦虑。以家庭为中心的心理治疗侧重于讨论家庭单元的压力源以及制定应对策略,以防止一个家庭成员的病情发展过程加剧另一个家庭成员的病情。这种模式已应用于患有不同慢性病的家庭,但其在管理遗传性疾病方面的作用和有效性仍有待研究。本文介绍了一个家庭接受以家庭为中心的HAE心理治疗的病例系列。

相似文献

4
[Hereditary angioedema].[遗传性血管性水肿]
Internist (Berl). 2019 Sep;60(9):987-995. doi: 10.1007/s00108-019-0644-1.
8
Emergency Department Management of Hereditary Angioedema Attacks: Patient Perspectives.遗传性血管性水肿发作的急诊科管理:患者视角
J Allergy Clin Immunol Pract. 2017 Jan-Feb;5(1):128-134.e4. doi: 10.1016/j.jaip.2016.06.029. Epub 2016 Sep 21.

本文引用的文献

5
Hereditary Angioedema.遗传性血管性水肿。
Emerg Med Clin North Am. 2022 Feb;40(1):99-118. doi: 10.1016/j.emc.2021.09.002. Epub 2021 Oct 29.
6
Evidence-based practice in cognitive-behavioural therapy.循证实践在认知行为疗法中的应用。
Arch Dis Child. 2022 Feb;107(2):109-113. doi: 10.1136/archdischild-2020-321249. Epub 2021 Jul 15.
7
Hereditary and acquired angioedema.遗传性血管性水肿和获得性血管性水肿。
Allergy Asthma Proc. 2019 Nov 1;40(6):441-445. doi: 10.2500/aap.2019.40.4267.
8
The impact of hereditary angioedema on quality of life and family planning decisions.
Int J Psychiatry Med. 2019 Nov;54(6):377-394. doi: 10.1177/0091217419837068. Epub 2019 Mar 29.

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验