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农村孤独症谱系障碍儿童家长网络行为家长培训干预的可行性、可接受性和效果:方案。

Feasibility, acceptability, and effects of a web-delivered behavioral parent training intervention for rural parents of children with autism spectrum disorder: A protocol.

机构信息

College of Nursing, The Ohio State University, Columbus, Ohio, United States of America.

Nationwide Children's Hospital, Columbus, Ohio, United States of America.

出版信息

PLoS One. 2024 Aug 27;19(8):e0307273. doi: 10.1371/journal.pone.0307273. eCollection 2024.

Abstract

Caregivers of children with autism spectrum disorder (ASD) often report higher levels of stress and mental health issues. Support services and parent training programs may help buffer the effects of caring for a child with ASD. However, due to the national lack of trained ASD providers and disparity of ASD support resources available in rural areas, caregivers often go without support. A possible solution to reach caregivers in rural areas is web-based interventions. This paper describes an ongoing pilot study examining the feasibility, acceptability, and preliminary effects on caregiver well-being and disruptive child behaviors for a web-based parent training program (Attend Behavior) for caregivers of young children (ages 2-11 years old) with autism spectrum disorder (ASD) living in rural areas (trial registration NCT05554198). The intervention is available on the internet as well as a downloadable app for mobile phones. Participants will be invited to use the intervention program for 12-weeks. Prior to using the program, participants will be asked to take a baseline survey assessing depressive symptoms (PROMIS Depression Short Form-6a), caregiver stress (Parenting Stress Index-Short Form), child disruptive behaviors (Home Situations Questionnaire-ASD and Aberrant Behavior Checklist). After 12-weeks, participants will be asked to complete a post-intervention survey with the same measurement scales plus questions regarding intervention acceptability, appropriateness, and feasibility (Acceptability of Intervention, Intervention Appropriateness Measure, and the Feasibility of Intervention Measure). Participants are also invited to partake in a brief 1:1 interview with a study team member to give further feedback regarding the intervention. Study retention and participant app usage data will be examined. Information generated from this pilot study will be used to inform a future larger scale randomized control trial of Attend Behavior.

摘要

自闭症谱系障碍 (ASD) 儿童的照顾者通常报告压力水平和心理健康问题较高。支持服务和家长培训计划可能有助于减轻照顾 ASD 儿童的影响。然而,由于全国缺乏经过培训的 ASD 提供者以及农村地区可用的 ASD 支持资源的差异,照顾者往往得不到支持。一种可能的解决方案是为农村地区的照顾者提供基于网络的干预措施。本文描述了一项正在进行的试点研究,该研究旨在考察针对自闭症谱系障碍(ASD)儿童的父母的基于网络的家长培训计划(Attend Behavior)在农村地区的照顾者(年龄在 2-11 岁)的可行性、可接受性和初步效果,这些照顾者的孩子患有自闭症谱系障碍(ASD)(试验注册 NCT05554198)。该干预措施可通过互联网以及适用于手机的可下载应用程序获得。参与者将被邀请使用该干预计划 12 周。在使用该程序之前,参与者将被要求进行基线调查,评估抑郁症状(PROMIS 抑郁量表-6a)、照顾者压力(父母压力指数-简短形式)、儿童破坏性行为(家庭情况问卷-ASD 和异常行为检查表)。12 周后,参与者将被要求使用相同的测量量表完成干预后调查,以及关于干预可接受性、适当性和可行性的问题(干预接受度、干预适当性衡量标准和干预可行性衡量标准)。还邀请参与者参加与研究团队成员的简短 1:1 访谈,以提供有关干预措施的进一步反馈。将检查研究保留率和参与者应用程序使用数据。本试点研究产生的信息将用于为未来更大规模的 Attend Behavior 随机对照试验提供信息。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2e34/11349109/148d6b49797f/pone.0307273.g001.jpg

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