Department of Neuroscience and Mental Health, Foundation IRCCS Ca' Granda Ospedale Maggiore Policlinico, Milan, Italy.
Department of Oncology and Hemato-Oncology, University of Milan, Milan, Italy.
Neurol Sci. 2023 Nov;44(11):3885-3894. doi: 10.1007/s10072-023-06903-9. Epub 2023 Jun 27.
This study aimed to evaluate the experience with telemedicine in patients with cognitive impairments and their caregivers.
We conducted a survey-based study of patients who completed neurological consultation via video link between January and April 2022.
A total of 62 eligible neurological video consultations were conducted for the following categories of patients: Alzheimer's disease (33.87%), amnesic mild cognitive impairment (24.19%), frontotemporal dementia (17.74%), Lewy body dementia (4.84%), mixed dementia (3.23%), subjective memory disorders (12.90%), non-amnesic mild cognitive impairment (1.61%), and multiple system atrophy (1.61%). The survey was successfully completed by 87.10% of the caregivers and directly by the patients in 12.90% of cases. Our data showed positive feedback regarding the telemedicine experience; both caregivers and patients reported that they found neurological video consultation useful (caregivers: 87.04%, 'very useful'; patients: 87.50%, 'very useful') and were satisfied overall (caregivers: 90.74%, 'very satisfied'; patients: 100%, 'very satisfied'). Finally, all caregivers (100%) agreed that neurological video consultation was a useful tool to reduce their burden (Visual Analogue Scale mean ± SD: 8.56 ± 0.69).
Telemedicine is well received by patients and their caregivers. However, successful delivery incorporates support from staff and care partners to navigate technologies. The exclusion of older adults with cognitive impairment in developing telemedicine systems may further exacerbate access to care in this population. Adapting technologies to the needs of patients and their caregivers is critical for the advancement of accessible dementia care through telemedicine.
本研究旨在评估认知障碍患者及其照护者对远程医疗的体验。
我们对 2022 年 1 月至 4 月期间通过视频链接完成神经科会诊的患者进行了一项基于调查的研究。
共进行了 62 例符合条件的神经科视频会诊,患者分为以下几类:阿尔茨海默病(33.87%)、遗忘型轻度认知障碍(24.19%)、额颞叶痴呆(17.74%)、路易体痴呆(4.84%)、混合性痴呆(3.23%)、主观记忆障碍(12.90%)、非遗忘型轻度认知障碍(1.61%)和多系统萎缩(1.61%)。87.10%的照护者完成了调查,12.90%的病例由患者直接完成。我们的数据显示远程医疗体验得到了积极反馈;照护者和患者均报告称他们发现神经科视频会诊很有用(照护者:87.04%,“非常有用”;患者:87.50%,“非常有用”),总体满意度高(照护者:90.74%,“非常满意”;患者:100%,“非常满意”)。最后,所有照护者(100%)均同意神经科视频会诊是减轻其负担的有用工具(视觉模拟量表均值±标准差:8.56±0.69)。
远程医疗受到患者及其照护者的欢迎。然而,成功实施需要工作人员和护理伙伴的支持来使用技术。在开发远程医疗系统时排除认知障碍的老年患者可能会进一步加剧该人群获得医疗服务的困难。使技术适应患者及其照护者的需求对于通过远程医疗实现可及性的痴呆症护理至关重要。