Buttolph Lita P, Villanueva Jamie, Parman Natasha, Wooliscroft Lindsey, Yeh Gloria Y, Bradley Ryan, Zwickey Heather
Helfgott Research Institute, National University of Natural Medicine, Portland, OR, USA.
School of Nursing, University of Washington, Seattle, WA, USA.
Glob Adv Integr Med Health. 2024 Aug 31;13:27536130241280721. doi: 10.1177/27536130241280721. eCollection 2024 Jan-Dec.
Preliminary evidence suggests that Qigong (QG), a mind-body therapy, may help address symptoms of multiple sclerosis (MS), but the heterogeneity of QG content and delivery may affect its feasibility, acceptability, and efficacy.
To survey researchers, clinicians, and QG instructors with experience working with people with MS to identify key components of MS-specific QG guidelines and protocols.
We conducted an online survey to identify QG forms and movements considered helpful for MS, reasons for selection, characteristics of effective learning environments, and recommended dosage and frequency of practice. Quantitative data were analyzed using summary statistics. Qualitative data were analyzed using reflexive thematic analysis.
Forty-seven experts, including QG instructors, clinicians, and QG and MS researchers, completed the survey. Respondents had a mean (SD) of 20 (11) years of QG teaching experience, 26 (12) years of clinical practice, 24 (9) years of QG research experience, 13 (5) years of MS research experience, and worked with at least 3 (2) people with MS. Approximately 125 QG forms/movements were recommended. Some forms were specifically recommended to address MS symptoms (e.g., emotional regulation, balance and coordination, muscle strength and flexibility, immune regulation, and circulation). Some respondents felt that any QG form could be beneficial if basic principles were met (e.g., intentional movement, posture, focused awareness, rhythmic breathing/movement, and a relaxed mind and body). Instructor qualities included the ability to convey information clearly, being caring and compassionate, proficient in QG, and having basic knowledge of MS. To promote confidence in learning QG, recommendations included having simple, easy-to-learn movements with modifications based on physical ability. We provide a sample protocol based on these recommendations.
This study provides expert guidance for developing a QG protocol for an MS population, including content and delivery recommendations.
初步证据表明，气功（QG）这种身心疗法可能有助于缓解多发性硬化症（MS）的症状，但气功内容和实施方式的异质性可能会影响其可行性、可接受性和疗效。
对有与MS患者合作经验的研究人员、临床医生和气功指导教师进行调查，以确定MS特异性气功指南和方案的关键组成部分。
我们进行了一项在线调查，以确定被认为对MS有帮助的气功形式和动作、选择的原因、有效学习环境的特点以及推荐的练习剂量和频率。定量数据使用汇总统计进行分析。定性数据使用反思性主题分析进行分析。
47名专家完成了调查，其中包括气功指导教师、临床医生以及气功和MS研究人员。受访者的气功教学平均（标准差）经验为20（11）年，临床实践经验为26（12）年，气功研究经验为24（9）年，MS研究经验为13（5）年，并且至少与3（2）名MS患者合作过。大约推荐了125种气功形式/动作。一些形式被特别推荐用于缓解MS症状（例如，情绪调节、平衡与协调、肌肉力量和灵活性、免疫调节以及循环）。一些受访者认为，如果满足基本原则（例如，有意识的动作、姿势、专注的意识、有节奏的呼吸/动作以及放松的身心），任何气功形式都可能有益。指导教师的素质包括能够清晰地传达信息、有爱心和同情心、精通气功以及具备MS的基本知识。为了增强学习气功的信心，建议包括有简单、易于学习的动作，并根据身体能力进行调整。我们根据这些建议提供了一个示例方案。
本研究为制定针对MS人群的气功方案提供了专家指导，包括内容和实施建议。
