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全球范围内保守性肾脏管理的可及性和质量。

Global access and quality of conservative kidney management.

机构信息

Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK.

Division of Nephrology and Hypertension, Department of Medicine, Groote Schuur Hospital, University of Cape Town, Cape Town, South Africa.

出版信息

Nephrol Dial Transplant. 2024 Sep 5;39(Supplement_2):ii35-ii42. doi: 10.1093/ndt/gfae129.

Abstract

BACKGROUND

Conservative kidney management (CKM) describes supportive care for people living with kidney failure who choose not to receive or are unable to access kidney replacement therapy (KRT). This study captured the global availability of CKM services and funding.

METHODS

Data came from the International Society of Nephrology Global Kidney Health survey conducted between June and September 2022. Availability of CKM, infrastructure, guidelines, medications and training were evaluated.

RESULTS

CKM was available in some form in 61% of the 165 responding countries. CKM chosen through shared decision-making was available in 53%. Choice-restricted CKM-for those unable to access KRT-was available in 39%. Infrastructure to provide CKM chosen through shared decision-making was associated with national income level, reported as being "generally available" in most healthcare settings for 71% of high-income countries, 50% of upper-middle-income countries, 33% of lower-middle-income countries and 42% of low-income countries. For choice-restricted CKM, these figures were 29%, 50%, 67% and 58%, respectively. Essential medications for pain and palliative care were available in just over half of the countries, highly dependent upon income setting. Training for caregivers in symptom management in CKM was available in approximately a third of countries.

CONCLUSIONS

Most countries report some capacity for CKM. However, there is considerable variability in terms of how CKM is defined, as well as what and how much care is provided. Poor access to CKM perpetuates unmet palliative care needs, and must be addressed, particularly in low-resource settings where death from untreated kidney failure is common.

摘要

背景

保守肾脏管理(CKM)描述了对选择不接受或无法获得肾脏替代治疗(KRT)的肾衰竭患者的支持性护理。本研究记录了全球 CKM 服务和资金的可及性。

方法

数据来自 2022 年 6 月至 9 月间进行的国际肾脏病学会全球肾脏健康调查。评估了 CKM 的可用性、基础设施、指南、药物和培训。

结果

在 165 个回应国家中,有 61%的国家以某种形式提供 CKM。通过共同决策选择的 CKM 可及性为 53%。为那些无法获得 KRT 的人提供的选择受限的 CKM 可及性为 39%。提供通过共同决策选择的 CKM 的基础设施与国家收入水平相关,在大多数医疗保健环境中,71%的高收入国家、50%的上中等收入国家、33%的下中等收入国家和 42%的低收入国家报告称“普遍可及”。对于选择受限的 CKM,这些数字分别为 29%、50%、67%和 58%。只有略多于一半的国家提供了用于疼痛和姑息治疗的基本药物,这高度依赖于收入水平。大约三分之一的国家提供了 CKM 中症状管理的护理人员培训。

结论

大多数国家报告了一些 CKM 的能力。然而,CKM 的定义以及所提供的护理内容和数量存在相当大的差异。CKM 获得机会较差导致未满足的姑息治疗需求仍然存在,必须加以解决,特别是在资源匮乏的环境中,那里未经治疗的肾衰竭导致的死亡很常见。

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