Université du Québec à Montréal, Canada.
Centre de recherche et de partage des savoirs InterActions, Centre intégré de santé et des services sociaux (CIUSSS) du Nord-de-l'Île-de-Montréal, Canada.
Autism. 2022 May;26(4):900-913. doi: 10.1177/13623613211035229. Epub 2021 Jul 30.
Quality of life refers to how people perceive aspects of their life such as physical health, material security, and interpersonal relationships. Studies have reported lower quality of life among autistic individuals than in the general population. This article contributes to a better understanding of quality of life and its measures from the point of view of autistic adults. By comparing two groups of French-speaking autistic adults from two different places (France and Québec-Canada), this research shows that the perception of quality of life and its determining factors differ for autistic adults living in each country. The Québec group reported a superior quality of life, and some quality of life predictors were different in each group. The social experience of autism-related stigmatization, however, was a powerful predictor of quality of life for all. To promote a higher quality of life for autistic people, it is important to consider the sociocultural context and implement awareness programs and public campaigns aimed at identifying and countering stigmatization processes.
生活质量是指人们对生活各个方面的感知，如身体健康、物质安全和人际关系。研究表明，自闭症患者的生活质量低于普通人群。本文从自闭症成年人的角度出发，对生活质量及其衡量标准进行了深入探讨。通过对比来自法国和加拿大魁北克两个不同地区的两组法语自闭症成年人，本研究表明，生活质量的感知及其决定因素因生活在每个国家的自闭症成年人而有所不同。魁北克组报告的生活质量更高，而每个组的一些生活质量预测因素则不同。然而，与自闭症相关的污名化的社会经历对所有人的生活质量都是一个强有力的预测因素。为了提高自闭症患者的生活质量，重要的是要考虑社会文化背景，并实施旨在识别和对抗污名化过程的意识提升计划和公共宣传活动。
