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“一直告诉我要减肥可不是解决办法!”探究子宫内膜癌幸存者对营养与健康建议的体验:一项定性研究。

'It's not a solution to keep telling me to lose weight!' Exploring endometrial cancer survivors' experiences of nutrition and well-being advice: A qualitative study.

作者信息

Williams Linda, Henry Claire, Simcock Bryony, Amataiti Tutangi, Perelini Olivia, Filoche Sara

机构信息

Department of Surgery and Anaesthesia, University of Otago, Wellington, New Zealand.

Department of Gynaecology, Christchurch Hospital, Te Whatu Ora, Waitaha Christchurch - Health New Zealand, Christchurch, New Zealand.

出版信息

Aust N Z J Obstet Gynaecol. 2025 Feb;65(1):156-162. doi: 10.1111/ajo.13875. Epub 2024 Sep 6.

DOI:10.1111/ajo.13875
PMID:39242357
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11924152/
Abstract

AIMS

The aim was to explore Endometrial cancer (EC) survivors' experiences of being offered nutrition and well-being advice.

METHODS

This qualitative study was conducted at two tertiary centres in Aotearoa New Zealand. Semi-structured conversations with people who had completed treatment for EC in the past 12 months were undertaken to explore how they were offered nutrition and well-being advice as part of standard follow-up care. Interviews were analysed using reflexive thematic analysis.

RESULTS

Fifteen people of Pacific, Māori and European ethnicity participated. Five themes were derived: (i) isolation and vulnerability, (ii) importance of language, (iii) inconsistent availability and relevance of nutrition and well-being information, (iv) competing priorities and influences and (v) holistic and culturally responsive support. People often experienced judgement associated with their weight as part of their care, with limited understanding of their lived realities. Nutrition and well-being advice was not widely available or accessible, and people had to explicitly ask for it. Social and environmental factors were barriers to making changes to health behaviours. A need for culturally safe holistic care was identified.

CONCLUSION

Enhancing survivorship after EC is ultimately premised on providing culturally safe and responsive care. Expanding workforce training in communication around high weight as well as education and self-assessment of cultural safety could enable aspects of this. A holistic care program could facilitate wider access to nutrition and well-being advice and better meet the needs of this population.

摘要

目的

旨在探究子宫内膜癌(EC)幸存者接受营养与健康建议的经历。

方法

这项定性研究在新西兰奥特亚罗瓦的两个三级医疗中心开展。与过去12个月内完成EC治疗的患者进行了半结构化访谈,以探讨他们在标准后续护理中是如何获得营养与健康建议的。采用反思性主题分析法对访谈进行分析。

结果

15名太平洋岛民、毛利人和欧洲裔参与者参与了研究。得出了五个主题:(i)孤立与脆弱性,(ii)语言的重要性,(iii)营养与健康信息的可得性和相关性不一致,(iv)相互竞争的优先事项和影响因素,(v)全面且具有文化响应性的支持。人们在接受护理时经常因体重而受到评判,对他们的生活现实了解有限。营养与健康建议并不广泛可得或易于获取,人们必须明确提出请求才能获得。社会和环境因素是改变健康行为的障碍。研究确定了对具有文化安全性的全面护理的需求。

结论

提高EC幸存者的生活质量最终基于提供具有文化安全性和响应性的护理。扩大围绕高体重问题的沟通方面的劳动力培训以及文化安全性的教育和自我评估可能有助于实现这一点。一个全面的护理计划可以促进更广泛地获得营养与健康建议,并更好地满足这一人群的需求。

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本文引用的文献

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Increasing incidence of endometrial cancer in Aotearoa New Zealand: Health professionals' perspective.新西兰子宫内膜癌发病率不断上升:卫生专业人员的观点。
Aust N Z J Obstet Gynaecol. 2024 Apr;64(2):114-119. doi: 10.1111/ajo.13751. Epub 2023 Sep 22.
2
Cancer survivorship programs for patients from culturally and linguistically diverse (CALD) backgrounds: a scoping review.癌症康复计划服务于具有不同文化和语言背景(CALD)的患者:范围综述。
J Cancer Surviv. 2024 Dec;18(6):2052-2077. doi: 10.1007/s11764-023-01442-w. Epub 2023 Aug 12.
3
Weight stigma experienced by patients with obesity in healthcare settings: A qualitative evidence synthesis.肥胖患者在医疗保健环境中所经历的体重歧视:定性证据综合分析。
Obes Rev. 2023 Oct;24(10):e13606. doi: 10.1111/obr.13606. Epub 2023 Aug 2.
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FIGO staging of endometrial cancer: 2023.国际妇产科联盟(FIGO)子宫内膜癌分期:2023 年。
Int J Gynaecol Obstet. 2023 Aug;162(2):383-394. doi: 10.1002/ijgo.14923. Epub 2023 Jun 20.
5
Equity of Cancer and Diabetes Co-Occurrence: A National Study With 44 Million Person-Years of Follow-Up.癌症和糖尿病共病的公平性:一项随访 4400 万人年的全国性研究。
JCO Glob Oncol. 2023 May;9:e2200357. doi: 10.1200/GO.22.00357.
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Body composition and endometrial cancer outcomes.身体成分与子宫内膜癌结局。
J Natl Cancer Inst Monogr. 2023 May 4;2023(61):49-55. doi: 10.1093/jncimonographs/lgad012.
7
Interventions for weight reduction in obesity to improve survival in women with endometrial cancer.肥胖症减肥干预措施以提高子宫内膜癌女性的生存率。
Cochrane Database Syst Rev. 2023 Mar 27;3(3):CD012513. doi: 10.1002/14651858.CD012513.pub3.
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Gynecol Oncol Rep. 2022 May 26;41:101011. doi: 10.1016/j.gore.2022.101011. eCollection 2022 Jun.
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The roles of experienced and internalized weight stigma in healthcare experiences: Perspectives of adults engaged in weight management across six countries.经验和内化的体重歧视在医疗保健体验中的作用:六个国家参与体重管理的成年人的观点。
PLoS One. 2021 Jun 1;16(6):e0251566. doi: 10.1371/journal.pone.0251566. eCollection 2021.
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Interventions to improve cancer survivorship among Indigenous Peoples and communities: a systematic review with a narrative synthesis.改善原住民和社区癌症患者生存状况的干预措施:系统评价与叙述性综合。
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