School of Information, The University of Texas at Austin, Austin, Texas, USA.
Silberman School of Social Work, Hunter College City University of New York, New York, New York, USA.
BMJ Open. 2024 Nov 20;14(11):e085597. doi: 10.1136/bmjopen-2024-085597.
This qualitative study aimed to analyse rectal cancer survivors' lived experiences to identify facilitators and barriers to support access.
We conducted one-on-one semi-structured interviews and employed thematic analysis to identify key themes and insights.
SETTING/PARTICIPANTS: Participants included eight rectal cancer survivors and three caregivers recruited at Texas Colorectal Collaborative sites.
Results showed that adequate hospital resources, high health literacy and close connections with clinicians and peers who share similar experiences facilitate survivors' access to social support. Conversely, ineffective healthcare team communication, financial challenges and low self-motivation hindered access.
Survivorship experiences were shaped by varying degrees of social support access, influenced by internal and external factors. We aim to establish a cross-institutional survivorship support network to address these factors, ensuring equitable access to support services and enhancing survivorship experiences.
本定性研究旨在分析直肠癌幸存者的生活体验，以确定支持获取的促进因素和障碍。
我们进行了一对一的半结构化访谈，并采用主题分析来确定关键主题和见解。
地点/参与者：参与者包括在德克萨斯州结直肠协作站点招募的 8 名直肠癌幸存者和 3 名护理人员。
结果表明，充足的医院资源、较高的健康素养以及与具有相似经验的临床医生和同行的密切联系，有助于幸存者获得社会支持。相反，医疗团队沟通不畅、经济困难和低自我激励阻碍了获得支持。
生存体验受到社会支持获取程度的不同影响，这些影响受到内部和外部因素的影响。我们旨在建立一个跨机构的生存支持网络，以解决这些因素，确保公平获得支持服务并提高生存体验。
