Kim Minju, Lee Jieun
College of Nursing, Dong-A University, Busan.
Department of Nursing, Choonhae College of Health Science, Ulsan, Korea.
J Hosp Palliat Care. 2024 Sep 1;27(3):87-98. doi: 10.14475/jhpc.2024.27.3.87.
This study aimed to investigate advance care planning needs expressed online.
This study collected data from online community posts and healthcare news sites. The search keywords included "death," "euthanasia," "life-sustaining medical care," "life-sustaining treatment," "advance directives," "advance medical directives," and "advance care planning." Data collection spanned from February 2018 to February 14, 2020. Out of 2,288 posts, 1,190 were included in the final analysis. Data analysis was conducted using NVivo 12, a qualitative data analysis software program.
Content analysis categorized patients' advance care planning needs into eight themes, 11 theme clusters, and 33 meaningful statements. Similarly, care providers' advance care planning needs were categorized into eight themes, 14 theme clusters, and 42 meaningful statements. The identified themes of care needs included life-sustaining medical care, decision-making related to life-sustaining medical care, physical care, environmental care, supportive and spiritual care, respect, preparing for death, and family.
This study identified care needs from the perspectives of patients and their families. The findings may serve as preliminary data for future research and clinical applications.
本研究旨在调查网络上表达的临终关怀规划需求。
本研究从网络社区帖子和医疗新闻网站收集数据。搜索关键词包括“死亡”“安乐死”“维持生命的医疗护理”“维持生命的治疗”“预立医疗指示”“预立医嘱”以及“临终关怀规划”。数据收集时间跨度为2018年2月至2020年2月14日。在2288篇帖子中，1190篇纳入最终分析。使用定性数据分析软件程序NVivo 12进行数据分析。
内容分析将患者的临终关怀规划需求分为8个主题、11个主题集群和33条有意义的陈述。同样，护理提供者的临终关怀规划需求分为8个主题、14个主题集群和42条有意义的陈述。确定的护理需求主题包括维持生命的医疗护理、与维持生命的医疗护理相关的决策、身体护理、环境护理、支持性和精神护理、尊重、为死亡做准备以及家庭。
本研究从患者及其家属的角度确定了护理需求。研究结果可为未来研究和临床应用提供初步数据。
